We are seeking to raise funds for Symphonya to bring awareness of her rare gene-linked brain condition called Lissencephaly in the hope to
Nationwide
With less than 8 people in NZ with Lissencephaly (pronounced 'listen-carefully') and a high fatality rate of children never reaching the age of 10 years, we hold onto the hope there is a cure, which may include research and further medication, therapy or travelling. With that limited time frame, we aim to give Symphonya the best opportunity to enjoy life.
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