We are wishing to raise funds for Maddy so she can eat and drink like a normal little girl
Auckland
Maddison was born with a condition that meant that when ever she was fed, both breast and bottle, part of the milk would go into her lungs rather than her tummy causing her to choke and and cough. After multiple trips to hospital the decision was made to insert a feeding tube. She was only 4 weeks old!
Now she is 6 months old and a beautiful, happy little girl who always has a smile to share. Her development has come along with leaps and bounds and she is ready to try to be weaned off her feeding tube. This is a lot harder to do than it sounds and New Zealand does not have the people or facilities available to make this happen. The longer Maddison has the feeding tube inserted, the less likely it is that she will ever be able to eat unassisted.
Maddison's best hope of getting rid of her feeding tube and to be able to eat and drink normally is to bring a team of experts in this specialised field to New Zealand from Germany. They will be able to provide the tube weaning treatment Maddison desperately needs, which is just not available to her in this country. Within the team is a speech and language pathologist who assists in the most intensive and tricky weans. The experienced speech therapist, the hands- on master, specialises in tube weaning and Castillo Morales Therapy.
The cost to do this is $30,000, if anyone would like to make a donation to help us reach this goal we would greatly appreciate it.
I am involved as i am Maddys Mum and want her to enjoy her food like other babies
Maddys Tube Weaning Journey 21 April 2015
Hi All here is Maddys journey through her tube weaning. Maddys tube was taken out after one day by the weaning specialist from Germany. Maddys tube feedings were slightly reduced a week prior to him arriving. Days 2 - 5 were really tough for us all, Maddy had to learn the connection between hunger and food. We had a lot of sleepless nights and some crying and pushing food away during those days. Then on Day 7 Maddy chest was checked out to make sure it was all nice and clear, which it was. But we found out she was carrying a unrine infection also teething. For a few days it was a struggle to get her to take fluid, so we had to make sure she had plenty of wet nappies. Luckily she was eating fruit puree which helped with the hydration. We are now at Day 13 without a tube and Maddy is eating a variety of foods and drinking water and baby fruit juice. It was a decision to stop her formula as the formula she was on tasted absolutely terrible and would mean she needed the tube for another few months. We just have to make sure she has a balanced diet, she loves her yogurt and custard!! oh and ice cream!. The specialist goes back to Germany tomorrow, he has been absolutely amazing with Maddy. It hasnt been an easy process and we still have things to work on with Maddy but the good news is the tube is gone. Thank you so much to every single one of you that have supported us, we couldnt have done it without our friends and family. Yay Maddy will be able to enjoy her 1st birthday cake in just a few months!!!
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