Support 4 Billy Cover

Billy is 16 years old, in July this year he started to have rapid vision loss. Billy has been diagnosed with 'Lebers Hereditary Optic Neuropathy' a mitochondrial mutation causing rapid central vision loss. Billy was accepted for a drug trial just over 5 weeks ago, the response has been amazing! At Billys check up last week the improvement was very encouraging, his vision was good enough to go for his restricted drivers license :) (Five weeks ago Billy couldn't recognise a face) But....it soon became a bitter/sweet moment when the specialist informed us that the drug has been approved in Europe, meaning we would now have to pay for the medication :( The price for this medication is $60,000 for a six month script :(