Alana has Cystic Fibrosis she is now at end stage lung failure and is in desperate need of a double lung transplant.
Canterbury
Alana needs your help to fundraise for the extra expenses that will arise for her and her family during and after her transplant.
Alana is 28 years old and was diagnosed at birth with cystic fibrosis. Cystic fibrosis is a disease that causes thick, sticky mucus to build up in the lungs, digestive tract, and other areas of the body. It is one of the most common chronic lung diseases in children and young adults. There is no cure for Cystic Fibrosis yet. Alana has kept well over the many years considering the disease can be very relentless however over the last year she has become significantly sicker and sicker. She is now at end stage lung failure and is in desperate need of a double lung transplant. Alana has now been listed on the active list for transplant and can get a phone call any time now that could have her racing up to Auckland with new lungs ready to give her a second chance at life!
Alana is focusing on staying healthy as she can be whilst she awaits the call for her new lungs. Her days consist of being prepared, organised, focused and positive!
Her days consist of being connected to oxygen 24/7, BiPAP (which is used whilst Alana sleeps, BiPAP stands for Bi-level Positive Airway Pressure. It is a breathing apparatus that helps people get more air into their lungs), daily use of her Gastrostomy tube (a gastrostomy tube helps provide extra calories. A small tube is inserted through the skin into the stomach, which is connected to a longer tube and a pump used at night. The pump delivers a high-calorie formula whilst Alana sleeps), daily Nebulizers (Nebulizers are electric - or battery-powered machines that turn liquid medicine into a fine mist that's inhaled into the lungs. The user breathes in the mist through a mouthpiece or facemask). With all of these daily challenges as you can imagine it takes Alana up to an hour to get out of bed, gain enough energy to be able to have a shower, after a shower it then takes Alana another hour to recover. Alana tries her hardest to keep up with daily physical activity via yoga, basic exercise and weights to ensure her muscles are not weakened too much prior to transplant. If Alana wants to leave the house to visit a friend or grab a coffee she needs to plan ahead and organise what she will need to take with her and to also ensure there is enough battery life in her oxygen machine whilst she is out and also allow plenty of time to recover and rest. Alongside all of these lifesaving crucial treatments Alana also has hospital admissions every 6 weeks for 2-3 weeks treatment of intravenous antibiotics.
Alana has 3 siblings who all live in Australia and who also have young families of their own. As soon as they get the call that Alana has successfully received her donor lungs, of course they will be on the next plane to NZ to be by their sister’s side. Transplant is a very scary time for not only Alana but also her family and friends. Unfortunately the demands of financial stress is one that is always present for everyone involved – last minute flights are never cheap, not being unable to work, taxi’s, food etc. Please help donate and support Alana’s family so they can be by her side for as long as she needs.
Please help support Alana and her family as they go through the journey of a double lung transplant!
Fundraising for my family.
One year after transplant 28 July 2016
Sorry haven't written anything.
On Friday the 29th July 2015 I received an amazing gift, a double lung transplant. on Friday will be my one year after my transplant.
I want to thank everyone for there beautiful messages and there donations that helped myself and my family.
I have achieved so much over my year, I have done a lot of motivational talks and have planned to do many more talks. I walk everywhere I can and even ran into the water at the beach over summer. Life is so short and we need to remind ourselves to take in the Moment and breathe xx
Thank you again for your help much love from myself and my family
I will always be thankful to my beautiful donor who I will always be grateful to and their love ones you are my guardian angel thank you for giving me a new life, forever grateful xoxo
'positive mind body and soul"
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