Iharaias Rare Illness

When iharaia turnd 1 he was diagnosis with budd chiari syndrome which means he clots his veins in his liver. we were told without a liver transplant he wouldn't make it. A year later he got a liver transplant 7months after post-transplant he clotted his new liver the doctors didnt no why or what happen but now there is not alot of options left out there for iharaia as it is a rare illness.

There are a few people in the world that have budd chiari syndrome but are not the same as iharaias he is the only one with his kind of budd chiari syndrome so the only treatment at the moment for iharaia is to keep his blood thin and take a liquid chemo everyday to kills some of the platelets as his bone marrow makes to many and a couple of other meds

So we take oneday at a time with him. Everyday we wake up and see iharaia we no we have another day to spend with him.

Our special little boy is constantly in and out of hopsital all the time. Its a big struggle daily for him and his family.

Emotionally mentally financially

we need so much for iharaia from a bigger car to a bigger house that can cater for iharaia n his brothers n sisters iharaia is so isolated from the world and even his own family if he is sick or they are sick he can not be around them life is so unfair to him and his siblings

we are in need of all that help we can get so please help in anyway you can even if its alittle we will be so greatfull

so at this present time All funds raised will go towards travel expenses general living costs day to day needs for iharaia and also a bigger car etc. so we can transport his wheelchair around

and to hopefully oneday take him out of new zealand for treatment WE WILL NEVER GIVE UP SEARCHING thanks to everyone that took the time to read this