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Anne's Appeal for Stem Cell Therapy for MS

Cause page created in the Health category by Anne Besley


$11,575 of $75,000 goal

Given by 172 generous donors in 7 weeks

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I have aggressive Multiple Sclerosis (MS). I need to travel for Stem Cell Treatment to put the MS into permanent remission.

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  Auckland

My name is Anne Besley. I am a 49-year-old mum of an amazing teenage daughter Devon, wife to my wonderful husband Brett and a part time wedding and funeral celebrant.

In 2006 I was diagnosed with Multiple Sclerosis (MS) when my daughter was 1 years old. My journey with MS has been a very long one and a big roller coaster.

I worked as an operating theatre nurse educator but found very quickly after my diagnosis that standing was a challenge, I was constantly dropping things and breathing became hard, so I had to move to a nursing administration job, giving up the job I loved. Eventually working at all became too difficult as my illness not only challenged me but also my employers.

The nerve pain I had was tremendous and whilst the third drug did manage this, ultimately it proved I needed a much more powerful drug as walking became very difficult again. I again had to give up my beloved nursing career as cognitive issues resurfaced, my memory became worrying, I started to lose my hearing and developed another scary symptom called laryngospasms which could close off my airway.

I was put on a 4th much stronger drug that has helped my MS symptoms considerably. I have however now been tested positive for the John Cunningham Virus (JCV) a virus which means that this 4th drug is now dangerous for me to take as it can cause a fatal brain infection called Progressive Multifocal Leukoencephalopathy (PML) given the positive result for this virus.

If I come off of this drug, all of my old symptoms will come back (breathing difficulties, laryngospasm, nerve pain, walking issue to name a few) and the MS will progress. However, if I stay on it, it’s very possible that I could suffer the brain infection that the virus exposes me to. The risk I face for this brain infection is 1:333 escalating to 1:125.

Multiple sclerosis is an autoimmune disease where the body’s immune system attacks its own tissues. There is no cure for MS, just a progressive slide into permanent disability.

Hematopoietic Stem Cell Therapy (HSCT) for the treatment of MS is a pioneering treatment successfully used overseas in just 3 countries (Russia and Mexico – Russia by far does treats the most cases and has the best success) to “reset" a person’s faulty immune system. The treatment involves harvesting stem cells from the bone marrow, followed by chemotherapy to shut down the faulty immune system. Stem cells are then given back to grow a new healthy immune system. Patients stay in the hospital for a month for the treatment until they are well enough to travel home.

This treatment will save me from the threat of a fatal brain infection, and I don’t have any other options. I need to raise NZ$120,000 so that I can receive Hematopoietic Stem Cell Transplantation (HSCT) at the leading clinic A.A Maximov Clinic in Moscow. All of the funds raised will be spent on my treatment at this clinic, my flights, and also flights and accommodation for my husband who will come over for the final week of treatment and help me travel home.

This treatment is led by Dr. Denis Fedorenko, the Leading Haematologist of Russia, Doctor of Medical Sciences, Professor of the Department of Haematology and Cellular Therapy. He has performed this procedure to hundreds of patients with a high success rate (for my form of MS this clinic has an 85-95% success rate that there will be no further progression in my disease). For many patients there has also been an improvement in general mobility and functionality.

I feel like they I am staring into the depths of darkness, pain, disability and dependency. For years I have been fighting this insidious disease, and at times I feel desperate because I seem to fail on all the drugs I have been given. For the first time, I really feel hopeful that there is a treatment that may completely halt this disease and allow me to live a more normal life and be there for my family.

Any contribution you can make would be most gratefully appreciated.

Thank you

Anne

Use of funds

The money will spent on travel, tests, the stem cell treatment.

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Latest update

Fundraising Quiz Night  5 August 2019

Come and join us at the Milford Bowling Club for a fun quiz night on the 7th September at 6.15pm to raise funds for me to get the India for HSCT (Haematopoetic Stem Cell Therapy). There is a bar, there will be pizza, and some fabulous auctions. Some of the auction items are....

A weekend away for two at Air BnB in Pauanui...

A 5 night stay at a luxury 2 bedroom appt 50 meters from the noosa river and any number of restaurants, coffee shops (does not include flights)...

A 30 min flight for one around the Auckland CBD...

A Dysport (like Botox) consultation & treatment to the value of $300...

1 treatment of 2 tubes of PRP, Valued at $750 . Platelet rich plasma transfers of growth factors with stem cells...

A hair cut and colour voucher...

A beauty therapy voucher...

A massage voucher...

There are other things, so please keep your eyes on this and my facebook page because I will be making posts about what the auction items are! See the below link...

Thanks

Anne

https://m.facebook.com/events/353634728616052/

Read 3 more updates


Latest donations

  • Guest Donor

    Guest Donor 4 days ago

    $100

    $100

  • Alistair

    Alistair 6 days ago

    $100

    A friend from Middlemore!

    $100

    • Anne Besley

      Hi Alistair, thank you so much for your donation!! I am so grateful for all of the help. It is so very humbling... thank you. Anne

  • Christine

    Christine on 13 Aug 2019

    $200

    Love you. You're amazing. You inspire in so many ways. Go get well.

    $200

  • Thomas153

    Thomas153 on 11 Aug 2019

    $10

    Love you Anne! Let's get you the help you deserve!!!

    $10

    • Anne Besley

      Hi, thanks so much for your donation, I am so grateful to everyone for their help. Thanks, Anne

  • Anne-Marie

    Anne-Marie on 08 Aug 2019

    $15

    $15

    • Anne Besley

      Hi, and thank you so much for your donation to me, I am most grateful to you. Anne


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This page was created on 5 Jul 2019 and closes on 30 Sep 2019.
$11,575 of $75,000 goal

Given by 172 generous donors in 7 weeks

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