To raise money for Zani to see a specialist in Ehlers Danlos for chronic back pain.
Manawatu / Whanganui
As many of you know, 6 year old Zani has woken screaming with back pain since he was 2. He has had MRIs and xrays but no answers - we have tried alternative approaches but nothing works!! Sleepless nights and chronic pain have always been his norm :( His bones break easily and his ankles are so flexible so he rolls them on a daily basis. After much research we have begun to suspect a hereditary disease called Ehlers Danlos or Joint Hypermobility syndrome. They are connective tissue disorders to do with how the body processes collagen. Many of Zani’s symptoms line up with this. We have been booked in to see a specialist in ehlers danlos in a weeks time and are raising funds for the costs involved - every bit helps!
Mother
Specialist appointment/s and treatment, flights to Auckland and accomodation.
Appointment postponed 17 August 2020
Hey guys, thanks again for the generous donations. Unfortunately the covid 19 level 3 in Auckland went into place the day before our appointment so it has been postponed until further notice. We were so so guttered!! But the funds you donated Will be tucked away safe for when it is rescheduled. Thanks again. Xx
Thanks Anna!! So appreciate it! Xx
Hi there - I’m not sure who this is but we cannot Thankyou enough! Arohanui xx
Thanks nan- love you
Your message will be displayed on the page and emailed to the donor.
Your new message will also be emailed to the donor.
Saving a blank entry will delete the current comment.