No treatment or cure for 5yr old James. Help us with his bucket list AND now the training of service dog Charlie!!

James is so rare to date there is no name for his condition. In July 2016 he was admitted to hospital where he stayed for 2 weeks as he had stopped eating, and was incredibly wobbly on his feet. Since then our lives have been a roller coaster of medical appointments. James is now in a wheelchair and tube feed. His speech is hard to understand and he has moments where he blanks out. James' fatigue levels are extreme and his gut no longer works properly. James' decline has been rapid and no one can tell us how long we have with him. We know it's limited so we will do everything we can to make his time here memorable for him, his 2 brothers and us his parents.