Help us, Help Carter
- $10,705.00 donated
- 105 generous donors
This is to reach out to you all and give you some more information on Carter and what we are faced with... Noonan Syndrome.
Hi Everyone, Friends, Family and Lovely Humans :-)
So the reason we have decided to set up this givealittle page is to reach out to you all and give you some more information on Carter and what we are faced with.
Carter has Noonan Syndrome. This is a genetic disorder which will never go away. Noonan Syndrome could be hereditary or not, in Carters case it seems to be a random occurrence, we are still waiting for further test results. Noonan Syndrome is the second most common genetic disorder after Down Syndrome, and the scale of severity is varied. The resource that we would recommend if you want to find out more is: http://www.teamnoonan.org/information/
Carter definitely has issues related to all areas affected by the Noonan gene. He has to see more than TEN different specialists to advise and monitor all these different issues. The main concerns for Carter are: his heart, his feeding, and his development.
Because of these issues caring for Carter is complex and time consuming, emotionally and physically exhausting. Because of the level of ongoing care that is necessary, Sheri is unable to return to her job and has had to unfortunately resign. This creates a real financial strain for us as we had expected Sheri to be back at work months ago. Callum is working so hard! But has also had to have a lot of time off.
Sheri and Carter have had to attend up to five appointments each week, this has included trips to Rotorua and Auckland and next week (24/11/16) we are travelling to Waikato Hospital for Carters first surgery. Understandably this is a very tiring and stressful time for us so if you’re able to “givealittle” to help out with costs we would be extremely thankful.
Despite all these issues Carter is generally a happy, smiley baby and we are grateful to be his parents and be able to give him the best possible start to life.
We welcome and are happy to answer any questions you have, flick us a message, call us or come visit. We miss you all and wish we were more able to get out and about to show off our gorgeous boy to you.
Lots of love,
Callum, Sheri and Carter Hall <3
Page created by:
Mum and Dad doing the best they can :-)
Funds will be paid to a verified bank account of Callum and Sheri Hall.
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