Not the end, just the beginning.
31 March 2017
Hello everyone.
Today's the final day of our givealittle page being open for donations and I know I should be doing a final push for donations because yes we will need them and yes the budget is tight but I can't. I can't and soon I will tell you why.
First an update on Carter.
Our little champ has pushed through hours of therapy, me hassling him to do things that are difficult for him and has achieved the biggest goal we had set for his first year. He sat up by himself at his first birthday party (a week or so before actually) and I couldn't be prouder. Sitting is still a big part of his therapy goals as he now needs to learn to use his arms to support himself and move side to side while sitting. Everything that comes naturally and smoothly to others he has to learn bit by bit, move by move. We have a great team of therapists though so I know he will achieve anything.
Carter has another surgery and an MRI scan of his brain coming up, both under general anesthetic in Waikato and another echocardiogram to check his heart prior to these. As well as continuing with regular visits with the pediatrician, cardiologist, dietician, speech therapist, physical therapists and homecare nurses. He greets them all with a cheeky smile and shyly snuggles into mum.
We continue to fight with getting enough calories into him for growth and are still up all night because of his intake needs, but he has had no backwards weights and is making steady progress so we keep trucking. He currently still wears 6 month old clothes :).
We would so love for you to meet him and see what a fantastic little guy he his.
But why can't I ask for your money today?
Because my heart is breaking. Breaking for another family affected by Noonan Syndrome and their time of great need is now. The Dowd family have two children with NS and tragically their youngest Isabella is nearing the end of her journey in this dimension. She has endured a life of hospitalizations, tubes, surgeries and pain but has experienced such an astounding, unconditional love from those around her. So please consider giving your final donation not to us and our goals and achievements but to the precious hopes and memories of wee Isabella. The link to their page will be in the top comment of my Facebook post or search 'Please help little Isabella Hope and her family' on givealittle.
Thank you xx
