Cohen a great son , brother , uncle too all his family and friends now its our time too help him the best that we can .
Southland
My name is Cohen ,I am 24 yrs old and I have Neurofibromatosis NF1 which is one of the worlds worst genetic diseases known to human kind . Unforgettably I drew the short end of the stick and have been sick all my life , I have had over 20 operations all being serious , I have also been on every man made opiod too the point I could not function as a human being as I was sleeping 18 hours per day , I am the youngest person in the world to have one of my Cancers and its that rare there are only 4 reported cases worldwide , guess what I was number 4 . Because of medications I am deemed and osh risk , so I have never had a job and have never had the experience to earn my own money and seriously it stinks been on a benefit . I also believe that I may be the youngest person to sign a Do not resuscitate order . My life has been a turmoil right from the beginning and just when I think its back on track ( Bang ) I get smacked in the face once again with another medical challenge .The great thing is my parents and family , they have always been there when needed and my Dad even lost jobs as a result of time I spent in Hospital and not once has he ever been negative , mind you none of my family has . My Mum Christine also has this disease and is the same lady that was on here for the facial reconstruction surgery . I have decided enough is enough now and I want time out with my loved ones and therefore seeking Donations too do things that I have never been able too do because of Financial restrictions that were imposed on all of my family because of this dreaded disease .
SO PLEASE HELP ME ACHIEVE THIS AND DONATE TOO MY WORTHY CAUSE WHISLT I AM STILL HERE .
THANKING YOU ALL AND GOD BLESS .
I am his Father and he doesn't deserve the life he was given I am trying to make his last days on earth more enjoyable and exciting for him with medical costs ,accommodation , fuel plus any dream or wish that's he so desires , I want to make it happen and the only way of achieving this is to seek for understanding and empathy and donations that will be greatly appreciated .
the Funds will be used for Quality of life and anything he wishes too do with the time we may have left with him
Recieved mail today 17 September 2018
I have received a letter today from Professor Mark Elder in Christchurch , so have too ring him tomorrow to arrange to see him personally , last time I saw him was in 2014 . Well I rung Christchurch and was told the letter was sent out by MISTAKE , My Mum rang them back and Said it was actually Mark Elder that requested to see Me and they said sorry and are sending me an urgent appointment too see him . I have received the letter and see him in Christchurch on November the 1st at 11.00 am .
Thanking you so much he wishes too do most of the extreme jumps and swings in Queenstown , tandem jump , nevis swing , he would also like to travel at 320kmph plus in a sports car in Cromwell too . these are just a few of the main ones , god bless .
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