Back to page

Desperate Times call for Desperate Measures

  • One year on

      22 August 2023
    Main image

    Today is one year since my surgery. As I have looked back over the last few months, I began to recognise just how close I to the veil I walked, both before and after the surgery. What a totally different life I have now! The surgery did for me all that I had hoped for: it allowed me to eat a varied and nutritious (and sometimes naughty) diet; I can exercise again: am now walking regularly, have biked a few times (Petal loves that), I've been jogging twice (if you can call it that), I can use a skipping rope, and I've been doing regular saunas and swims, up to 300m so far; I can contribute again. I am so blessed. I am also very fortunate to have been able to take the time to heal and rehabilitate without worrying about finding a job. However, I also have the first world problem of trying to figure out how to LOSE weight for the first time in my life. While most of the trauma prior to and after surgery has been processed and the memory fades, I have not forgotten the generosity of all those who contributed to my staying-alive campaign. Thank you, thank you, thank you. I think I'll crack open a bottle of red and drink to another year onward and upward! Cheers!!!

      0 comments  |  Login to leave a comment
  • Rebirth

      30 November 2022
    Main image

    It's 14 weeks and 2 days since my ReBirthDay, and high time for an update. I've been dithering on this one; on the one hand, my short-term memory is really bad (anesthesia does that) and the import and trauma of the last few months has faded fast; on the other hand, my life is now feeling much more ordinary, so what's to tell and who would want to know?

    Well, lots has happened, actually.

    A few days after I came home, I shaved off all my hair (again). After several weeks of being unable to sufficiently attend to my psoriasis, and with hair falling out in clumps, it looked and felt awful and had to go. I am happy to report that the psoriasis is gone now, and my hair is growing in such that I actually have to check the mirror in the morning in case it's standing up on end.

    Two months after my surgery, I celebrated with a Rebirthday party, complete with cake and candles, something I haven't had in more years than I can remember. We also had Mum's recipe pavolova, trifle, chips and dip, bread, BBQ, bangers, and beer. Well, not beer, I never did like beer. I did have a bit of wine though, and I may have got a little wobbly... We also had a brazier in the back yard, which I enjoyed long after everyone had left.

    On the physical side, my healing is going well. I had a couple of doozy wounds which took quite some time to heal. My mid-line incision blew apart a couple of weeks after surgery and required weeks of "secondary intention" healing (from the bottom up). Quite a miracle to witness. Also, my "Barbie bum" has been taking it's time and is still on the mend. Needless to say, it's not smooth as I envisaged. I may have to come up with some other descriptor.

    The other day I came up with a new moniker for my bowel. which I quite like; I have a semi-conlon! Lucy is continuing to talk sh*t and gasbag, as she is supposed to, and Yogi Berra is right up there with the best catchers in the world, also as expected. Stoma bag fashion is improving; Kat, my lovely stoma nurse, had me try out her first samples of black bags recently. This is a vast improvement on the "skin coloured" bags previously available. Fortunately, they work well for me (there are lots of different designs) and I am waiting on my first standing order. Luckily, all of my stoma supplies are fully funded thanks to the historical campaigning of my ostomate predecessors. (An ostomate is someone with a hole (stoma) somewhere on their belly to divert either number ones (urostomy) or number twos (either a colostomy or an ileostomy, depending on if it's the end of the colon or the ileum. Mine is a colostomy.)

    Unfortunately, I am at the point where I probably ought to slow down on the eating thing; around two years ago, I weighed just 41 kilograms, and now I am up to 62 before breakfast... Whoa up Neddie, I've never done that without babies before! I was quite happy to get to 58, my teen weight. However, I'm not too bothered as I haven't really got serious about getting fit yet, I am holding back the reins until I am fully healed so I don't go messing things up. I have been getting into the garden and going for walks, but I'm not doing the mowing yet and resisting splitting the last of last season's firewood.

    So, it's nearly the end of the year, and, for the first time in ages, I can contemplate a holiday...without having to download a loo app. I have a holiday partly planned; from Christmas until mid-January, I will be heading down South. If you live that way and haven't heard from me and would like to catch up, please do contact me, I have started planning my diary and I would love to fit in seeing as many folks as I can.

    Thanks for reading this far, and thank you from the bottom of my heart for helping me get my life back.

    I'll leave you with a photo from my rebirthday. My late friend, Lynley made the dress for me nearly three years ago, complete with tulle underskirt, and told me if it didn't fit then I should put on weight. Well, Lynley, I did, and it fit perfectly. (And yes, that's a parcel ribbon around my head.)

    Arohanui!

      0 comments  |  Login to leave a comment
  • We are there!

      7 September 2022
    Main image

    We have reached the goal, between Givealittle and private donations! I am still not sure what the last bill will be, but the amount raised thus far is pretty much over the target so I have adjusted the end date for fundraising to tonight at midnight. Woohoo!

    I was discharged from Greymouth Hospital on Monday 5th and am now staying with Nikita and Te Koha at Rapahoe where the food is THE BEST! I am a born-again foodie, I must say. I am healing quickly, although I have will have a wee bit of a delay with my belly wound as it decided to take the long way to healing. Technology is amazing, I have this handbag-sized machine which keeps a constant vacuum on the wound to help with the process and keep it clean.

    I'm getting used to Yogi Berra emptying and changes, and Lucy is doing everything she should--talking sh*t and gas-bagging.

    Petal is pleased to have me back, and I am looking forward to being independent enough to go home and admire the daffodils.

    Once again, immense gratitude for all your support!! Words do not fully express what this means to me. I'm all social again, so if you want to get in touch, I'd love to hear from you.

    Arohanui ki aa koutou katoa xxx

    Great love to you all xxx

    Viv

      0 comments  |  Login to leave a comment
  • Day 12

      3 September 2022
    Main image

    I woke up this morning feeling a million bucks. Good sleep, pain control and a decent amount of healing are all factors. I nearly went home yesterday but my blood results are a bit weird so I'm staying in hospital until Monday. I am pretty mobile and independent now and can see myself coping at home whereas yesterday it seemed miles away. I've had a few visitors over the past few days, and keen for more if you are in the vicinity! I am busting for the future, eating all sorts of things I haven't dared to touch for decades.

    Once again, I am incredibly grateful for the support from everyone which means I am now able to say the worst is finally behind me and the world is opening up in front of me! Arohanui xxx

      0 comments  |  Login to leave a comment
  • Goal revision

      31 August 2022
    Main image

    Two of three bills have been finalised and costs are less than initially forecast, which is fantastic. We are nearly there! Thanks to all for your contributions, they have enabled my life changing (for the better) operation, and I am well on the road to recovery. I was transferred today to Greymouth Hospital. The trip made me feel a bit like Elvis... all shook up! One step closer to home.

      0 comments  |  Login to leave a comment
  • Day 5

      27 August 2022
    Main image

    Just wow. I knew I had good reason to be fearful going into surgery: it's been a gigantically difficult few days. From immediately after surgery until yesterday lunchtime I could not see an end, even though there were some improvements. Yesterday afternoon I finally turned a corner. Lucy (stoma) took a while to stay awake, but once she figured out her job I immediately felt better. So far, Yogi Berra (bag) has lived up to his name and not dropped the ball.

    I've started eating better too, which is amazeballs! The sun is shining, the daffodils are in bloom, boats and people glide past my window, where I have a pretty good view from the bed. Looks like I'll get through and get a life again.

    I am so grateful for everyone's support. I'm not sure what the final bill is yet but I'll ring St George's Hospital on Monday and find out. Then, I believe, I will be able to revise the Givealittle target down!

    Also, I will likely be transferring to Greymouth Hospital via ambulance after the weekend, if all keeps going well.

    Have a great weekend everyone!

    In deep appreciation, from my heart to yours.

    Viv.

      0 comments  |  Login to leave a comment
  • Operation

      23 August 2022

    Vivienne's operation has happened at last! Thank you from my heart to all those that have donated towards this.Its been a rough time for Viv and recovery is going to take some time.

    She was transferred to Christchurch Public today. Tired, and nauseous but still kicking.

    Miranda (Vivienne's sister).

      0 comments  |  Login to leave a comment
  • Two more sleeps to go!

      20 August 2022

    Well, to be more precise, two more SETS of sleeps to go! I think I've kinda, sorta got all my ducks in a row, aided by the fact that I'm not getting fevers anymore--small mercies!

    I'm heading over the mountains tomorrow with my daughter and her partner, so we'll be all good for Monday 7 AM admission, 1030 surgery. Exciting/freaky!

    Donations have been contining to tumble in and change forever my perspective on monetary generosity (for the better). I have every one of you to thank for that. You all also reinforce my belief that people are essentially good-hearted, despite how it can seem through the narrow lens of media.

    You can be assured that I will be paying it forward in every way I can.

    I deep appreciation;

    Viv

      0 comments  |  Login to leave a comment
  • Surgery Date!

      14 August 2022

    What a week it's been. I have been incredibly humbled by the generosity and love extended by family, friends and strangers. Please know that I have seen every comment and appreciate every individual who has supported me thus far, both in sharing and donating.

    In further news, I am booked in for surgery on the 22nd of August, which is just 8 days from now! What a relief! Surgery will be done at St George's Hospital in Christchurch. I have also updated the goal for fundraising, as I have been given a more accurate pricing picture. I am heartened by progress in just a week, and anticipate that the page will need to stay up beyond the target date set at present, but this is flexible. I will update you again soon. Meantime, please keep sharing the page.

    Love to all.

      0 comments  |  Login to leave a comment