Please help us get Glenn's mobility van modified!

Hello and thank you for visiting our Give A Little page!

We are fundraising for the difference to the costs required to get Glenn's mobility van modified to safely transport him within our community, to school, and to his various therapies and medical appointments.

Glenn has a neuromuscular disorder called Congenital Myotonic Dystrophy. It is a type of Muscular Dystrophy. This condition is a progressive muscle-wasting disorder that has no cure, only management. This means a lot of ongoing follow up - a lot of appointments ranging from paediatrics, neurology, cardiology, regular therapy just to name a few. Glenn also attends school, a gym group with specialised equipment, riding for the disabled, and an aquatic programme as well.

As a result of having this condition, Glenn has significant problems with muscle weakness and developmental delays, and as he grows, it is very difficult getting him in and out of the car due to his size. Glenn is 5 years old, however he could easily pass for an older child due to his height and weight. As his Mum who takes him everywhere, it is taking it's toll on me physically, which is why we urgently need our van modified.

Glenn uses a wheelchair, and wears a back brace to help keep his spine straight, along with AFO's (ankle-foot orthoses). While he is starting to learn to walk assisted, he will always need a wheelchair as backup due to fatigue and energy conservation.

We will receive partial funding for the modifications (this will cover approximately half the cost of the modifications), however we need to continue with our saving and our fundraising to help with the rest of the cost - modifications to be done to the van will include a rear hoist for the wheelchair, suitable seating to accommodate the family, points for the wheelchair to be secured, along with points to transport any additional required equipment we may need to take with us at any point (for example Standing Frame, or Hoist), and certification etc. We have the vehicle, we just need to get it modified!

Having Glenn's van modified will make our lives a lot easier with Glenn being able to access the community more, as a result of being able to be transported in his van.

We would like to thank everyone who has supported our fundraising efforts so far.

Thank you for your consideration.

Regards, The Dolbel-Neville Family.