Halo has been in starship for 6 months now and is currently in PICU. She has been through alot and is still going through heaps.
Bay of Plenty
Multiple abnormalities
She is such a complexed baby
She has
- trachea
-left club foot
-multicystic kidney
-her right hip is out of place
-cleft palate
-malrotated organs
-small thyroid gland
-petuitry gland is small
So she has to take thyroxine and hydrocortisone for the rest of her life.
I'm involved because I am her mother and main carer. I've been here with her right from when she was born to now until forever.
To help my family travel back and forth to Starship hospital and to also help with financial situations. There's alot of things we need for our baby before we go home which we don't know when that will be. With my family here it's a financial struggle because bills don't pay themselves and this will help us alot.
She's slowly progressing 20 October 2017
We found out recently that our baby's kidney well 1/3 of her kidney is only just functioning. But as long as she doesn't get a urine infection she'll be okay. We are still in starship hospital.
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