Lets come together as a community and support Syd, Kaylee and their kids.
Auckland
We would like to introduce to you Haven who was born on 28 September 2020 by emergency C-Section at 34 weeks but he was only measuring at 27 weeks, weighing in at 1.124kgs.
Haven was born with Congenital CMV also known as Cytomegalovirus. CMV has many severe medical complications for babies which start developing in the womb.
Due to being born with CMV Haven has been severely effected by the following:
Hearing Loss
Enlarged Liver
Enlarged Spleen
Calcifications on his brain
Dystonia (A movement disorder in which Havens muscles contract uncontrollably. The contraction causes the affected body part to twist involuntarily, resulting in repetitive movements or abnormal postures. Dystonia can affect one muscle, a muscle group, or the entire body)
Polymicrogyria (This is an incurable disease and depending on the areas of the brain implicated can cause developmental delay, crossed eyes, epilepsy, paralysis of the face, throat, and tongue)
On Home Oxygen (all the time)
On a Feeding Tube
Since Haven was born he spent his first three months in NICU, in Auckland and Waitakere Hospital. Since then has had a number of hospital stays with various issues related to his condition.
Over the next year, minimum, he will have to have a lot of hospital appointments and hospital stays. It s very important that when Haven does get sick or has an episode that he is taken straight to hospital for treatment as it’s a very serious condition in which the hospitals don’t treat lightly.
This is a huge upheaval for their family, which consists of Sydney, Kaylee and their two daughters who are 8 years and 18 months. For those who know Sydney and Kaylee they are not ones to ask for help lightly but as a family we can see that they need ours and your support financially through this tough time.
With all the hospital stays and appointments, Sydney, in support of Kaylee, stays home to look after the other girls and therefore has to take time off from his job. Unfortunately with having to take so much time off work this effects them financially with rent, petrol, food, bills and any of the expenses of life as they struggle without Sydney’s income, their only income. Any monetary help could really assist with the above.
We would greatly appreciate your support to Sydney, Kaylee and their family. Anything that you donate will be greatly appreciated. Please spread the word.
I am doing this on behalf of our family for Kaylee and Sydney. I am Kaylee's aunty.
This will help Syd, Kaylee & Family financially with their rent, petrol, food, bills & all other expenses of life. With Haven this will be an ongoing need for them. All money donated will be used to cover all of these expenses and more.
Your message will be displayed on the page and emailed to the donor.
Your new message will also be emailed to the donor.
Saving a blank entry will delete the current comment.