LIFE SAVING SURGERY REQUIRED, "URGENT"
"LIFE SAVING SURGERY" only available in Germany.
Napier, Hawke's Bay
Trinity is just 19yrs old and needs URGENT lifesaving surgery. She has a connective tissue disorder that affects the collagen that runs through her body creating havoc + She has been confirmed with AVCs, Abdominal Vascular Compressions, which affects the blood flow to her organs & prevents her being able to hold food down & absorb nutrition. These Compressions are threatening her life if left untreated. Surgery is not available in N.Z.
$180,000 raised means Trinity can receive the lifesaving surgery at the Clinic Bel Etage in Düsseldorf with leading Vascular Surgeon Prof Sandmann & his Specialised team of Clinicians who have confirmed the urgency for treatment.
Trins life is one of constant pain, fatigue, nausea, blackouts, weakness, weight loss & malnutrition, all due to the inability to eat or drink without vomiting, pain & distress.
Trin is an avid equestrian, loves deeply & is loved by all that meet her. She is kind, passionate & lives for her horses. She dreams of life free of pain, the ability to eat, a life where she can dress without having to try & hide tubes hanging from her body, a life of quality.
The family have fought long & hard for 18 years within N.Z’s health system, however feel very let down as there is no longer support here, the only option is to get Trin overseas for the complex surgery required.The family is very grateful for the public’s help to raise the $180k to save Trinity's life.
https://www.facebook.com/profile.php?id=61551410426812&mibextid=ZbWKwL
Lynn Hankey's involvement (page creator)
Grandparent
Use of funds
Initially, Costs to have diagnostic tests and medical care done Privately ( N.Z, DHB's will NOT do these) plus International travel costs to Germany, for Lifesaving Vascular Compression surgery and post Op care. If, for any reason, we don't get to Germany, then we will post a page update with further information as well as details for people to contact us should they wish for a refund or transfer. Givealittle will not be involved in any refund process.
Other page links
Latest update
When the System Fails the Rare Few – Trinity’s Fight for Life, Health & Hope 17 July 2025
While we wait for Trinity’s genetic testing results — answers that may change everything or nothing — life doesn’t stop. Trinity lives with a rare, complex condition that still has no name. One clue has been found, but the full picture remains unknown. And because the system can’t label it, it can’t support her.
There’s no care plan. No defined treatment path. No agency saying, “We’ve got this.” Instead, we hear the same three words: “She doesn’t qualify.”
She doesn’t qualify for state-funded hydration, nutritional support, or disability services — all because no one can officially name what she’s battling. In NZ , if your illness is too rare, your access to care becomes conditional — and we’re left fighting for scraps in a system that doesn’t see us.
We spend over $1,000 a week just to keep Trinity stable — private care, travel, therapy, medication — while juggling appeals, paperwork, and endless advocacy. It’s crushing. It’s not sustainable. And it’s not fair.
Still, Trinity fights. So does her mum, Anna. Their strength is incredible.
Trinity deserves more than survival. She deserves a life.
We don’t know what the genetic results will reveal. We don’t know what tomorrow holds. But what we do know is this:
WE WILL NOT GIVE UP..
Not on Trinity.
Not on the belief that every child, no matter how rare or undefined their condition, deserves care.
Not on the hope that this country can do better.
Please share, donate, or help us keep going. Your support means everything.
Latest donations
Lindsay, Thank you so very much for your very generous donation & support 🦓 💕, we are constantly blown away by the generosity of total strangers and can never find enough words to express our sincere gratitude, To follow along on Trinity's journey, please go to her Facebook Health page; "A Compressed Angel" . We would also be most grateful if you shared her page with your friends and contacts
Toby, Thank you so very much for your very generous donation & support 🦓 💕, we are constantly blown away by the generosity of total strangers and can never find enough words to express our sincere gratitude, To follow along on Trinity's journey, please go to her Facebook Health page; "A Compressed Angel" . We would also be most grateful if you shared her page with your friends and contacts
Le Dung Tu, Thank you so very much for your kind donation,🦓 💕. We cannot express strongly enough just how much this means to us at this point in time, THANK YOU. To follow along on Trinity's journey, please go to her Facebook Health page; "A Compressed Angel" . We would also be most grateful if you shared her page with your friends and contacts
Waylyn, Thank you so very much for your very generous donation & support 🦓 💕. So pleased you enjoyed the Matariki display put on by Mark, he is one incredible person, whom we all admire so much. THANK YOU.. To follow along on Trinity's journey, please go to her Facebook Health page; "A Compressed Angel" . We would also be most grateful if you shared her page with your friends and contacts
Tehani, Thank you so very much for your kind donation,🦓 💕. We cannot express strongly enough just how much this means to us at this point in time, THANK YOU. To follow along on Trinity's journey, please go to her Facebook Health page; "A Compressed Angel" . We would also be most grateful if you shared her page with your friends and contacts
Who's involved?
Help Fundraise
You can create your own page to help fundraise for this cause.Page Q&A
4 questions have been asked already. Check them out and ask yours here.Any concerns?
Report this pageThank the donor
Your message will be displayed on the page and emailed to the donor.
Your new message will also be emailed to the donor.
Saving a blank entry will delete the current comment.