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Hello, I'm Willow, and I would love your help to heal the broken branches of my brain

  • I turned 1 this year!

      25 November 2019
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    In September this year Willow turned one! The coming of her first birthday was filled with mixed emotions for both Steph and Carston with the memory of the traumatic events of her birth along with the arrival of their beautiful girl.

    Willow has been in and out of hospital this year as her nasal gastric tube was removed and a Mic-Key Button was inserted for tube feeding. Unfortunately since this surgery there have been varying complications and Willow has been admitted back into hospital for further investigations. Steph and Willow have been in Starship hospital now for three weeks as Willow has developed a feeding intolerance and is frequently vomiting, so she has not been putting on weight, doctors are still trying to work out what they can do to help her through this.

    During this stay in hospital Steph continues to be the most dedicated, courageous and loving mother I have ever met, at Willows side 24 hours a day. The family is hopeful Willow will make improvements in the next couple of weeks so they can be discharged from Starship and go on their very much needed Christmas holiday.

    Any contribution you can make to this beautiful little family would be so greatly appreciated. Willow's special needs can get very costly and much of these costs are not covered by government funding.

    We also really think these guys just need a little extra for a bit pf pampering and self care! So if you make a donation and would like it to specifically go towards a little christmas self care or holiday treat please note this in your comments.

    Thank you so much, have a wonderful Christmas and enjoy the holiday season .

    Emily x

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  • An update from Steph and Carston...

      5 March 2019
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    As Willow reaches 6 months old we wanted to give a little update and add some pictures of her (see gallery). She is a happy wee girl, always smiling and finds almost everything funny! Although delayed, she is developing well with the help of several alternative therapies, as well as her regular hospital outpatients therapies and lots of extra input from us at home. The funds raised here so far are going towards a one week intensive therapy program in Melbourne this April. Unfortunately highly specialized intensive therapies like this are not available in New Zealand.

    Willow will be having minor surgery soon to place a gastric tube which goes straight into her stomach through her belly skin, to replace the nasal-gastric tube. This will make her smiley face even more beautiful!

    We continue to be amazed at the generosity of all the donations and well wishes for Willow. Thank you!

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  • A message from Steph and Carston

      14 January 2019
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    Steph and Carston wanted me to write an update on their behalf and say a huge thank you to everyone who has so generously donated to this page. Many of the generous donors have not met the family so they are just in awe of the collective kindness of our community.

    Little Willow is doing well, she has had a few hiccups, catching a bug over Christmas and having some complications with her NG tube, but despite all of this she is still gaining weight and developing steadily.

    Lets keep up the fundraising for this little lady! xx Emily

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