Hazel needs a Liver Transplant & will have to have at least 2 months off work. This is expected to be within 6 months.
Waikato
Written by my friend, Lisa:
Approximately two years ago, suddenly, Hazel was rushed into HDU. Her liver & spleen were enlarged, she had sepsis, pneumonia & 'sludge' throughout her abdomen. Later it would be found that she also has a hole in her heart & 2 leaking heart valves.
After numerous hospital stays, tests, biopsies, and eventually a liver resection to remove 1/3rd of her liver in May 2020, it was found that due to a rare congenital defect in her liver, bile is leaking into her bloodstream and causing sepsis - a life threatening condition if not properly managed. Hazel has Congenital Hepatic Fibrosis & is the first patient her Doctors have had with this disease as it is so rare.
With 28 admissions in 25 months & Sepsis episodes becoming closer together, Doctors are now starting to plan for a liver transplant within the next six months, which has its own set of lifelong challenges. All going well, this will mean at least two months in Auckland hospital, away from her children, work and life.
In the meantime, Hazel must go on short courses of antibiotics (as her body is becoming resistant) to keep the sepsis at bay. Once the course finishes, it is just a waiting game until she is readmitted to hospital. Unfortunately these reprieves are getting shorter as her hospital admissions are becoming more frequent.
During these stays in hospital, Hazel has continued to work, as best she could, from her hospital bed. Hazel is the proud owner/creator of Hazelmade Clothing, an ethical & eco-concious clothing line created here in Aotearoa, which she has worked hard to build up over the last 9+ years.
Essentially, as Hazel is the business, there is no sick pay or annual leave to draw on. To enable Hazel to truly rest and recover, we are asking for to help ease the financial burden while not being able to work.
Hazel is a wonderful wife, mother, friend and an inspiration to many around the globe. Even in the face of this momentous and daunting news, Hazel has remained positive and optimistic. Please help give her the best chance at a swift recovery so she can get back to her family and creating magic as soon as possible.
{Many thanks to Lisa for writing this for me! I didn't quite know where to start. Your support means the world to me, thank you so much}
Funds raised will go directly to support myself & my family through my transplant then recovery as I won't be able to work for at least 2 months.
I AM OFFICIALLY LISTED 4 December 2021
After a full on week of consults & tests, I was officially added to the Liver Transplant waitlist yesterday 🥳 I am now awaiting a call at ANYtime. It could be days or weeks but they suspect it won’t be very long, however, it is impossible to tell. Another person was listed yesterday too & received their call last night! I am a rare blood type so my list is shorter but also means less livers become available too.
Due to my complex health & recurrent sepsis, time is important to have the surgery before I run out of effective antibiotics due to becoming more resilient with each sepsis flare, but also, they have said I am otherwise doing ok which means they have a little more time & would like to do a ‘split graft’ if possible.
A split graft means that a donor liver can be split between me & a child which I think is absolutely amazing! It also means, as the surgeon said, these are the best livers possible to be able to do this & I will be told at the time.
Thank you so much for your continued support, I am now up to 35 admissions in 28 months & feeling VERY grateful that the Drs concern that I could have had to stay in hospital in June didn’t play out, although I am there almost fortnightly, I am so happy I am home between.
What a wild whirlwind, I will continue to keep you updated
Love always
Hazel
Thank you so much Emily 💗💗💗
Oh Ralph, thank you for your donation & sharing this story with me. I send thanks to Matt too, through tears, I am so touched by this, so beautiful, thank you. Lots of love to your family.
Thank you so much xx
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