Millie's Miracle

$43,832 donated
Given by 1063 generous donors in around 3 months

Help Millie get life-saving surgery in Germany

Otago

Millie has hypermobile Ehlers Danlos Syndrome - a genetic connective tissue disease that affects every part of her body. There is currently no cure for Ehlers Danlos and we lack proper medical treatment here in New Zealand.

As a result Millie has life-threatening vascular compression syndromes. She hasn’t slept through the night in over 3 years and weighs less than she did when she was 10. Even a sip of water causes her severe pain and nausea. Almost everything she used to enjoy doing is now impossible for her.

I can’t fathom how on earth Millie is still alive, let alone be smiling and positive. I guess illness and hardship either make or break us. In the midst of suffering and loss, she still manages to find joy and gratitude. People like her are rare and needed in our world.

I desperately want to keep my daughter alive and enable her to thrive.

For the past 5 years, I have been trying to find help. I believe our best option is to get Millie to Professor Wilhelm Sandmann in Düsseldorf, Germany. He is one of only a handful of surgeons in the world who is able to perform surgery to treat these compression syndromes.

This could be her miracle.

Previous page: https://givealittle.co.nz/cause/help-millie-fight-ehlers-danlos-syndrome-and-its

Use of funds

Surgery = $80,000

Flights and accommodation = $10,000 approx.

Additionally, she requires full-time care and will continue to need this for quite sometime as she recovers. I have been unable to work and will remain so for at least another year.

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Latest update

Journey home  8 November 2021

Millie has been recuperating after the trauma of complications from the feeding tube. She had a fever for several days and the strong pain killers wore off very quickly. It was a frightening time.

The head doctors of the clinic, Drs Schmitz and Al-Khayat, were extremely diplomatic and did what they could to try and resolve a very difficult situation.

Hopefully new protocol will mean no one else will have to endure the disappointment we have had.

We have flights for November 12 and arrive in NZ 11.45pm Nov 13. I have been appealing the declined MIQ exemption. But it seems unlikely.

Thank you all so very very much for your continued support, generosity and kindness

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Latest donations

Guest Donor
Guest Donor 3 days ago
Kia kaha Millie.
$35
Phoebe
Phoebe on 12 Nov 2021
Sending lots of hugs. Kia kaha Millie and family <3
$5
Janine Hardiman

Thank you 🙏

Janine Hardiman
Dianne
Dianne on 09 Nov 2021
Sorry to hear of your struggles, and I hope things look up for you. Kia kaha.
Private
Janine Hardiman

Thank you 🙏

Janine Hardiman
Crown Entity Monitoring team
Crown Entity Monitoring team on 08 Nov 2021
Best of luck to Millie and the family! From the Crown Entity Monitoring team (HUD)
Private
Janine Hardiman

Thank you so much- we are truly grateful for your kindness and generosity 🙏🤗

Janine Hardiman
Guest Donor
Guest Donor on 06 Nov 2021
Private
Janine Hardiman

Thank you

Janine Hardiman

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This page was created on 27 Aug 2021 and closes on 27 Feb 2022.