Millie's Miracle

Millie has hypermobile Ehlers Danlos Syndrome - a genetic connective tissue disease that affects every part of her body. There is currently no cure for Ehlers Danlos and we lack proper medical treatment here in New Zealand.

As a result Millie has life-threatening vascular compression syndromes. She hasn’t slept through the night in over 3 years and weighs less than she did when she was 10. Even a sip of water causes her severe pain and nausea. Almost everything she used to enjoy doing is now impossible for her.

I can’t fathom how on earth Millie is still alive, let alone be smiling and positive. I guess illness and hardship either make or break us. In the midst of suffering and loss, she still manages to find joy and gratitude. People like her are rare and needed in our world.

I desperately want to keep my daughter alive and enable her to thrive.

For the past 5 years, I have been trying to find help. I believe our best option is to get Millie to Professor Wilhelm Sandmann in Düsseldorf, Germany. He is one of only a handful of surgeons in the world who is able to perform surgery to treat these compression syndromes.

This could be her miracle.

Previous page: https://givealittle.co.nz/cause/help-millie-fight-ehlers-danlos-syndrome-and-its