Help Will by supporting James doing the Coast to Coast
Please support Will for his ongoing needs and to get him some new equipment (e.g new buggy) so he can experience life!International
Will is thirteen years old and is severely disabled due to a genetic disorder, known as mecp2 duplication syndrome .
He is restricted to a wheelchair for mobility.
Will is non verbal, but he has a kind and loving aura. Will is extremely resilient and tough. Despite all his challenges he maintains a wonderfully positive spirit.
He endures numerous health issues associated with his condition and seizures are a daily occurrence.
The funding via ‘give a little’ is to support Will’s increasing mobility and accessibility needs, and to provide him with more lifestyle options.
Because Williams condition is genetic he is not applicable for any ACC funded
mobility equipment or grants.
I am competing in the coast to coast on February 9th 2019, and by sponsoring me you will be helping pay for Will’s on going needs
Luckily, I am very focused, (slightly mad) and a keen man, because I need to cover the 243km course in one day.
Details of the event: The Longest Day competition is the World Multisport Championship race. Covering the same course as the two-day event but with the entire 243km course covered in one day. This is the ultimate multisport challenge and requires not only good fitness and skills, but a good dose of mental fortitude.
Any support you can provide would make the life of Will easier and more enjoyable.
Thank you for your support!
james culley's involvement (page creator)
Use of funds
The funds will be used mobility equipment to make Williams life easier and more enjoyable.
In the future I hope to be able to find a rental property that is more suited to the needs of my son,(hopefully), one with an accessible bathroom.
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This page was created on 23 Nov 2018 and closed on 19 Feb 2019.