Please help little Isabella Hope and her family

We have a large family, 2 of our beautiful children Isabella and Israel have a genetic condition called Noonan syndrome and are severely affected with significant health issues. Our family is facing a terribly hard road, the emotional and financial strain is enormous and the heartbreak is at times unbareable. Please help take some of the pressure off us.

Our baby Isabellas health is critical. Isabella has very complex health, on top of the Noonan syndrome she also has spastic quadriplegic cerebral palsy due to a brain bleed when she was born at 28 weeks gestation, she has chronic lung disease and requires oxygen 24/7, congenital heart defect, epilepsy and bleeding disorders. She has severe failure to thrive and problems with aspiration so is fed via an ng tube and has recently had to have a central line put in for extra nutrition and tpn. This is a terribly hard time for us, we are deeply saddened that Isabellas life may be significantly shortened and we want to provide her with everything she needs and enjoy the time we have left with her.

Our little boy, Israel, is nearly 3 years old and has had many of the same issues, he also has a heart defect, airway problem which required surgery, growth and feeding issues and has a mic-key button for feeding, bleeding disorders and joint problems related to joint hypermobility. He has had numerous operations and medical procedures which have greatly traumatized him. For more information on Noonan syndrome check out http://www.teamnoonan.org/information/#what-is

We live an hour away from Waikato Hospital and have many specialist appointments to attend for Israel and Isabella. Not to mention all the travel involved during our wee Isabellas lengthy hospital stays.

All help is so greatly appreciated xx