Support Epilepsy Family

$1,990 donated
Given by 10 generous donors in one year

My son who is now 5 years old who diagnosed epilepsy when he was 2 and still haven't find a cure yet.

Canterbury

My son Tenoch, who is now 5 years old, had diagnosed epilepsy when he was 2 but still haven't find a cure yet.

It is a very stressful thing to see our cute little son suffered by Epilepsy. Through this two years, we have been experienced alot and It is a nightmare to see him suffered many seizures a day or seizures that took longer than 5 minutes and admitted to hospital many times.

After trying 5 different medications, for the past few months, his seizures improved abit but still having between 12 and 30 seizures a month.

Seizures and medication also delay Tenoch's development. He used to be a very clever boy before he have any seizures, but now everything is much slower. At the age of 4 now, he is still having trouble to speak, walking up and down the stair, climbing and running straight.

The neurologist suggested we tried Ketogenic diet, which simply need to cut off all the carbohydrate food and every meal need to measure correctly. Therefore, he can't eat any rice, noodle, chip, cake, juice, basically all the food that kids like. However, this method did improve his development abit but so far can't see any sign of curing his seizure.

My wife and I have many stressful moments for Tenoch, as my wife now need to constantly care of him as well as another new born son, I am the only financial supporter for the family and we still have mortgage to pay and other unknown expenses for Tenoch. We do have hope that our son will be cured, but sometime our motivation to moving forward is low with the amount of stress that we had. With your financial support, our family will certainly have something less worry about and also can seek for more advice from experienced doctor oversea.

Jacky Ho's involvement (page creator)

I'm Tenoch's father, who raised this fundraising so we can have a little financial support when we are dealing with Tenoch's epilepsy situation. This is not a easy life for us, sometime is hard to stay positive when all the methods we tried seem failed and watching Tenoch suffered. Your donated money will definitely help our family alot.

Use of funds

Fund raised will be used to:

- Support family expenses

- Ingredient for Tenoch's Ketogenic diet food

- Travel oversea to consult more epilepsy expert

- Help his development

Read more

Latest update

Macau  23 November 2018

As some of you may know, we were now in Macau and seek more doctor advise in Hong Kong. We will stay there until January 2019.

The doctor in HK suggested we should drop Ketogenic Diet as this doesn't reduce his seizure activity and lack of protein. Also, suggested one of the medicine can be reduced to have less side-effect because Tenoch had some developmental delay due to the side-effect.

This journey is not easy for us, requires huge expenses but thankfully my in-laws support a lot and the money you donated had helped a lot too. Here's some of the summary.

In HKD approx:

1. Doctor appointment in HK ($5000+$2500+$2000)

2. Medicine to help Tenoch sleep better ($3000)

3. Chinese Medicine ($2000+$2500)

4. Transportation to HK a few time to seek the doctor ($4000)

5. Study material to help his development a bit faster ($3500)

6. Some classes that Tenoch can continue learning ($8000)

We also want to bring Tenoch to explore more interesting things, to widen his border to not just living in his world of rainbow and train. Also, he had missed all the tasty food for this last 2 years due to the Ketogenic diet. We want him to try the different type of foods.

We are still observing his progress, sometimes we still think Ketogenic diet still help a little bit to the seizure aftereffect. However, he is much happier, heavier and more energized, so getting rid of keto probably is a good decision to make.

Share this update

Read 4 more updates

Read more

Latest donations

Bob Reed
Bob Reed on 14 Mar 2018
I pray that God would give you the grace to keep clinging to Him during this difficult time. Our prayers are always with you!
Private
Guest Donor
Guest Donor on 19 Nov 2017
Add oil
Private
Bob and Deb Reed
Bob and Deb Reed on 11 Oct 2017
Praying for Tenoch and the family every day!
Private
Guest Donor
Guest Donor on 07 Oct 2017
Dear Jacky and Pui This is a difficult season for you and your family. I believe God can fully comfort you. We pray that Tenoch will be cured completely. Jeremiah 29:11 For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.
$300
Guest Donor
Guest Donor on 27 Sep 2017
Ecclesiastes 3:11 "He has made everything beautiful in its time. He has also set eternity in the human heart; yet no one can fathom what God has done from beginning to end." May the Lord bless you. :)
$400

Who's involved?

Jacky (Tsun Kay) Ho's avatar
Created by Jacky Ho, paying to a verified bank account of Jacky (Tsun Kay) Ho
Page Moderated
The page has been checked by our team to make sure it complies with our terms and conditions.

Gallery

Any concerns?

Report this page
This campaign started on 29 Aug 2017 and ended on 29 Aug 2018.