Hope for Hollie

Cause page created in the Health category by Salome Schlebusch for Johanna Beattie


$539,400 of $850,000 goal
Given by 7387 generous donors in 2 years

Helping Hollie and her family fight this fight that no child or family should ever have to go through. #hopeforhollie

  Auckland

Beautiful 8-year-old Hollie Beattie is currently in the middle of the fight of her life.

In July 2018 Hollie was diagnosed with a rare, aggressive form of cancer called Neuroblastoma.

Since then, Hollie and her family, Dad John, Mum Jo and Big Brother William have been on the most harrowing roller coaster of a journey.

After an initial round of chemotherapy and surgery to remove the main tumor, it was shattering for them to hear that the repeat tests showed the treatment had failed to make an impact on the disease in her bone marrow. It was a heart-breaking outcome.

As a result, Hollie was unable to begin the first stem cell transplant that had been scheduled for January 2019, and after an agonizing week waiting for approval from the USA for an immunotherapy drug, she began a new set of combined chemo and immunotherapy cycles on the 19th December, and made it home just in time for Christmas after the first round.

Following these rounds of treatment, Hollie has also now completed two stem cell transplants which included two sets of four week stays in Starship hospital, with Hollie in isolation each time followed by additional weeks of radiation which took her through to April 2020.

After testing and scans on completion of all treatment, residual disease was still showing in her left Tibia, but her bone marrow was clear, which was another small step in the right direction.

Surgery followed again to remove the remaining cancer from her leg and following this in July the Beattie’s received the fantastic news that Hollies test results were finally clear.

Despite being in various forms of lockdown for covid-19, they made the most of their time and regrouped as a family spending as much time together as possible.

Hollie's scheduled 3-month tests were in September, always a very worrying time for the family and this time the news was devastating as her scans showed signs that her cancer had returned, this time as a tumor in her brain.

The impact on the family has been unfathomable and the reality of what they had to face over the coming months hit like a wrecking ball.

Starship were incredible as always and had Hollie in for surgery to remove the tumor within a week.

After an overwhelming fundraising effort late last year, enough money was raised to get Hollie over to Spain on to a trial to target the cancer in her brain and spinal fluid.

Hollie and her Mum flew to Barcelona in January 2021 leaving John and William here in NZ to get started on the trial.

In April however, their worst fears were realised when the cancer in Hollies bone marrow relapsed and she had to be removed from the trial that she was already on. The impact on the family left them devastated once again, but this time they were apart and unable to support each other in person.

Thankfully Hollie is in Spain where the latest treatments are available in the form of immunotherapy for relapsed Neuroblastoma in bone marrow, but of course the family are now facing astronomical costs again for the treatment and there stay in Spain is likely to extend towards the end of this year.

The strain they are under is unfathomable.

This is where we can all help this incredible family again.

It has been indicated that the new immunotherapy treatment will cost in the region of $300,000, which is overwhelming amount to be faced with yet again.

Fundraising is going to be vital to get this family through the next phase, and we need each and everyone of us to spread the word, share Hollies story and hold fundraising events up and down the country and around the world to get us to the end goal.

We have a big target to hit again, but with the help and support of our wonderful community, we know we can come together to help give Hollie this shot at the future she so deserves.

We've done it before, and as a team we can do it again.

Thank you for anything you can do to help, and please reach out via this page if you would like any guidance, additional information or tips on fundraising we will be here to help you.

We are forever grateful for the continued support, it means everything x

https://www.facebook.com/hopeforhollie

Salome Schlebusch's involvement (page creator)

Friends of the family

Use of funds

As a striving young Auckland family, Jo and John are both working full time but we know that over this extremely difficult time there will be additional and unexpected expenses. This Givealittle page will help them to keep on keeping on.

Other page links


Latest update

Update image

Navigating the Next Steps  8 June 2021

Posted by: Salome Schlebusch

Hollie and William got to enjoy a fabulous day at the beach last weekend, before the big week ahead.

First dip in the Mediterranean wasn't too cold for this time of year, and some normal time and family fun was a rare luxury.

Hollie will complete her scans/tests this week ahead of her big review.

Every time is nerve wracking, but this one will have a rather large price tag attached to the results.

Thank goodness the family are all together for this one as the new costs apply an additional layer of stress and anxiety to the situation.

We have been told that each cycle of inmunotherapy treatment that Hollie needs will cost 28,200 Euros (47,500 NZD). She will need a minimum of 5 cycles and we will learn more as the tests over the next couple of weeks unfold.

The information on this link is alot, but will provide some additional information on this new immunotherapy treatment that Hollie needs for those interested.

https://www.sjdhospitalbarcelona.org/en/fda-approves-naxitamab-immunotherapy-treatment-against-high-risk-neuroblastoma-used-sjd-barcelona

Asking is hard, especially after all the support we have received already, but we need help to raise this level of funds with our original pot now empty at this stage from the treatment so far. 😔

Please help us get Hollie the treatment she needs. We ask you all, from the bottom of our hearts to put your fundraising hats back on and get sharing her page so we can start to chip away at the overwhelming target before us.

It means everything to us and we are forever grateful x

Please follow and share Hollies journey on her page in the link below:

https://m.facebook.com/hopeforhollie/

Read 14 more updates  |  Share this update


Latest donations

Verity
Verity 1 hour ago    24 Hours For Hollie
Sarah, as always you are a marvel! But for a desperately valuable cause. Good luck and best wishes to all of those taking part in this challenge and especially to Hollie xx
$50
Elizabeth
Elizabeth 9 hours ago
Love to you All from The Adlem Family xxx
$100
Emma
Emma 15 hours ago
Good luck to you all, sending lots of good vibes to your family.
$50
Sarah
Sarah 16 hours ago    24 Hours For Hollie
$100
Helen
Helen 18 hours ago
Thoughts and prayers are with you all xxx
$100

Who's involved?

Salome Schlebusch's avatar
Created by Salome Schlebusch
Johanna Beattie's avatar
Paying to a verified bank account of Johanna Beattie

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This page was created on 10 Aug 2018 and closes on 27 Oct 2021.
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