Helping Pete Saunders who has Acute Myeloid Leukaemia
At the end of April Peter Saunders was diagnosed with Acute Myeloid Leukaemia (AML) with FLT-3 and NPM1 mutations. For those of you who don't know much about Leukaemia, this is definitely one of the nasty ones, and the odds associated with survival are generally considered to be poor.
Luckily there are some possibly life-saving or life prolonging medicines available to Pete. Sadly they are not currently funded by Pharmac in NZ and they carry a price-tag which would make most of us shudder.
For those of you who have not met Pete's family, he has two exuberant boys aged four and five and a wonderful wife. With the future uncertain for Pete's family, and with the cost of medicinal treatment being equal to a small mortgage, we have decided to start a Give a little donation facility for Pete.
Those of you who know Pete will know that he is always the first to leap into action to support others when disaster strikes. He has time and time again proved his humanity in a professional culture which is often guilty of placing higher values on success and status instead.
Many of us have asked ourselves what we would do to support family and loved ones who have been diagnosed with a potentially terminal illness. The correct answer is whatever it takes, please donate whatever you think is appropriate to support Pete and his family.
We all wish him the best possible odds and a speedy recovery.
To help fund the potentially life-saving non-funded medications Midostaurin/Xospata (Gilteritinib) @ $44,000 per month for at least 6 months ($264,000)
Securing the unfunded medication 19 May 2022
We've got some positive news to share - we have managed to secure the Xospata drug that Pete requires at a significantly reduced cost of $20k per month.
However the projected costs are for longer than previously anticipated. Pete is likely to need Xospata for two years, potentially followed by a maintenance cost indefinitely thereafter.
This means on top of the $50k already sunk into the first two months of treatment, Pete will need a minimum of $480k over the next two years with ongoing costly maintenance treatment after that to keep the Leukaemia at bay.
The support for Pete through this give a little page has been amazing - messages, donations and most of all the sharing of the page through your networks to help Pete and his family through such an unexpected and trying time.
Please continue to share the link on you social media accounts - Facebook, LinkedIn, Twitter, Instagram. Every little bit counts! https://givealittle.co.nz/cause/helpsavepetersaunders