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Sonny Ebdale - Let's Help Sonny Battle Duchenne Muscular Dystrophy

  • Change of use of funds     29 August 2019
    Posted by: Jim Bryant

    We are changing the use of funds as a number of things mentioned are covered by the Ministry of Health. The use of funds will now be spent on helping provide Sonny more quality of life in these early stages while he doesn't need the aid of a wheelchair.

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  • Sonny to Start Exon Skipping      24 August 2019
    Posted by: Jim Bryant

    Sonny has been invited to start an exon skipping trial at the start of next year. On the 1st September 2019, Sonny will be starting a 6-month course of steroids to get his body ready for the trial.

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  • Sonny's Website is Live!     24 August 2019
    Posted by: Jim Bryant

    Sonny's website is now live which is packed with information and resources about Duchenne Muscular Dystrophy. There is also a blog where updates are posted regularly on Sonny's condition.

    Visit Sony's website at letshelpsonny.com

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