Life-saving treatment for teenage girl

Hi my name is Kate and I am making this page for my daughter Leah to help us get to Australia for life-saving treatment, which is not available in New Zealand. She is 14 years old and has (SMA) a neurological muscle wasting disorder. Treatment has been available in other countries since 2016 and is showing great results the younger you receive it. The treatment will stop the progression and in some cases has reversed (SMA). The treatment is a lumber puncher of the lower spine of a drug called Spinraza four times a year.

We will be about the 6th family to leave NZ for this particular treatment and we will be leaving behind our home our family, friends, pets and the only life we have ever known here. We are being forced to leave our country for this treatment which is very scary for us especially in the middle of a pandemic (covid19). We can not wait here any longer and watch Leah lose any more mobility functions than she has all ready lost. She lost the ability to walk when she was 3 then had to undergo corrective foot surgery at 7 to be able to continue to use a standing frame, then over the years scoliosis set in witch required spinal surgery at age 13. She has lost the ability to roll herself in bed since then, witch means me or her dad have to get up all thru the night to help her, this treatment will give her back that ability and some of the other mobility functions over the years such as doing her own wheelchair transfers, brushing her own hair and not being so tired/weak from the disorder.

Without treatment she will lose the ability to feed herself, move at all and eventually stop breathing. please help stop the progression of this horrible disorder for our little girl.