A New Heart for Lily

Lily was born on the 26th of June 2013 with a non cureable heart condition called Hypoplastic Left Heart Syndrome. Required are three palliative surgeries to ensure adequate blood flow around the body. Lily had her first open heart surgery (Norwood procedure) at just 32 hours old.

At 3 months old, Lily had her 2nd open heart surgery (Bidirectional Glenn).

At 10 months old, Lily faced her 3rd unexpected and extra open heart surgery (Tricuspid Valve Repair).

Lily went to Starship last week for a routine catheterisation and to see if she would qualify for the next needed open heart surgery, called the Fontan procedure. Unfortunately Pre-op tests showed Lily now has severe cardiac dysfunction with severe triscuspid regurgitation and therefore is not a candidate for the needed Fontan procedure which grants optimal blood flow to the body. Lilys heart is so severely damaged that even a catheterisation would be too dangerous and the only option now is cardiac (heart) transplantation. Lily is too small to receive a donor heart in New Zealand and the only possible place now is Melbourne. Lily and her family must move to Melbourne in order to be placed onto the transplant list and also for Lily's safety, she needs to be in the right place in case a donor heart becomes available or she has a serious heart event and her heart needs extra support while waiting for a new heart. Lily's father Adam must give up his job to move to Melbourne and the family now needs our help to raise money for moving costs and living expenses while they race to save Lily. No one knows when a heart will be available or if Lily will have enough time to wait, but they need our/your support so they can be together as a family in this very intense time.