Maia and Oshays battle

Hi everyone I'm Raewyn, aunty of these two gorgeous children.

My sister Sarah has 3 children oldest Malakai, Maia and youngest O'shay. And her partner of 17 years(I think) Steve.

Maia is a beautiful 13 year old girl who loves music.

She has NF1( Neruofibromatosis type 1) which caused optic nerve gliomas which has caused her to be totally blind( diagnosed around the age of 3). It was treated with chemotherapy but failed to help save her vision

She has also suffered absent seizures since a young age.

She has two brain tumors which she has had multiple surgeries and multiple rounds of chemotherapy over the last 10 years. She has a shunt in her brain to drain extra fluid from her brain also.

Maia also has a left side hemophlegia(paralysis of one side of the body) with the right side deteriorating over the last two weeks.

Maia has deteriorated over the last month and worsened over the last two weeks. Not being able to toilet herself. Her processing brain function is very slow. She hasn't ben eating or drinking. Sleeping all the time not wanting hugs which if you know maia she loves her hugs and food.

Shes been in Palmerston North hospital the last 4 days now she's going up to Starship hospital for more testing and surgery this week(9th August)

Even though maia has been through this her attitude towards life if admiring.

Now for O'shay hes a cheeky wee man who loves to play golf when he can and isn't in any pain from his back.

Hes 11 years old. He old has NF1(neurofibromatosis) which caused Scoliosis( curvature of the spine)

O'shay has been in and out of starship for 6 years with multiple surgeries on his spine.

Hes had growing rods inserted into his spine, which was unsuccessful twice.

He spent 3 months in starship in halo traction to stretch his spine by 10cm. Which he was also in isolation for the most part as he contacted the hospital superbug going around a the time.

He goes up again in a week for halo traction again and a spinal fusion.

So my sisters family will have two children up in Starship hospital but in different wards.