Millers Syndrome-Running for a cause

When I was born, the doctors tried to tell my parents that I may never walk, we chose not to listen and now I’m training for a half marathon!! Having now completed my first run of 10.5kms With the help of my mentor from #runninghotcoaching Lisa Tamati it’s now time to reveal why I am doing this and what it’s for! I have Millers Syndrome, this is extremely rare and affects only 40 people documented throughout the whole world! In New Zealand there is only 2 of us and I would like to create awareness of the syndrome, but also, of how capable people with disabilities can be. My feet are small, so small in fact that I fit children size 12 shoes! Wow and I’m running!!!! I would like to raise money for the FOUNDATION FOR NAGER AND MILLER SYNDROME this foundation is not for profit and aims to help get families to conferences in America and helps provide a positive, and extremely helpful conference for both adults and children, some of these families have to pay for medical care where in New Zealand we don’t have to! Please help me by donating to this cause and in return I will run a half, and eventually a full marathon! Raising awareness for MILLERS SYNDROME