Update for 09/07/2013
9 July 2013have just ordered a full wall mural for Alexis's room, can't wait to receive it! She is doing fantastic, had a lumbar punch and several more blood tests and due for another mri on 8/8. we have a much fuller schedule now. she is doing all things a baby of her age should be doing and has even cut her first tooth and is loving having solids.
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