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Keeping Miles afloat while they work on treatment for his NMO, a rare form of MS.

Cause page created in the Health category by Neil Fleming for Miles Skinner

  • $2,258.00 donated
  • 21 generous donors

Spare a few bucks so that Miles doesn't have to worry about paying his rent or his phone bill while fighting this rare form of MS...

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Employment Support Treatment Aid

Hello friends of Miles...

Many of you may know that Miles hasn't been well of late, but perhaps you weren't aware of the severity. Last fall, Miles was diagnosed with Neuromyelitis optica or NMO... a rare form of Multiple Sclerosis.

NMO, also known as Devic's disease or Devic's syndrome, is currently an incurable but treatable autoimmune disorder. The body’s immune system attacks its own healthy cells, most commonly in the optic nerves and spinal cord. It can cause temporary or permanent blindness and/or paralysis, and may have periods of remission and relapse. So yeah...

After months of back and spinal pain and several inconclusive biopsies, I'm sure it was a relief to find out what was actually ailing him. But also the bittersweet knowledge that he is the first recorded case in New Zealand, so the treatment plan is still in development many months later.

He is recovering at home now, but is on constant pain, and is on heavy medication, which doesn't sound heavy enough to me. The latest report suggests that he has or is near to losing the use of his legs, so he can no longer drive himself around. Which is probably safer for NZ drivers come to think of it...

So now, here is Miles - a doting father of two young boys that make him smile that huge infectious Miles smile we all know so well, a smile that they have inherited themselves btw - but here is Miles, stuck at home, unsure of his future, can't get himself around town, in constant pain, AND can't work so finds himself struggling just to keep up with expenses, rent, food and make ends meet.

So please, if you're a friend of Miles, share this and use this Funding Page to spare a few bucks so the man doesn't have to worry about paying his rent or his phone bill for the next few months... especially while he's waiting to find out what this crazy illness is doing to him, and how he's going to keep smiling in the future... Let him worry about bigger things.

All the best Miles - Love you chum.

Use of Funds:

While Miles is walking again, his motor skills and pain don't allow him to work. The medication he's on actually lowers his immune system's effectiveness so that it doesn't affect his healthy cells - but instead, he gets sick ALL THE TIME. So he's at home, unable to work. Funds will go to rent, bills, utilities, share of child support for his two boys, and Netflix.

Page created by:

Neil Fleming


Because it's Miles. And it's so easy to do this for him.

All funds raised benefit:

Miles Skinner


Funds will be paid to a verified bank account of Miles Skinner.

“Don't buy anything with gluten or my wife will kill me. Hope this helps you out in some way my friend.”
“Kia ora Miles & whanau, My heart is heavy with sadness to hear how much you have suffered and are still suffering...❤️❤️❤️ I pray for healing on your body Miles...I can only imagine even though I have my own disabilities, how much this affects your every day life. Please keep up what faith you have and stay strong....I pray God is with you🙏🏼❤️ All our love & prayers to you Miles & whanau❤️❤️❤️”
“Kia ora my cousin, Just sending a little bit more Aroha and support for you, hope you are alright cuz I have been meaning to come see you for some time now. Anyway I will sometime soon, thinking if you cuz. Capper Whanau”
“you look like you are the coolest dad... so truck on cuzn”
“So sorry you are still struggling my nephew I hope they find something that can help you with this terrible condition as soon as possible. Lots of love to you and the boys, I wish I could do more xxx”
“Hey Miles: Please feel better. xo Julie”
“Time for another push to help Miles - It's less than your cable bill and means a whole lot more... :)”
  • $2,258.00 donated
  • 21 generous donors

$2,258 donated

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This cause page was created on 09 Aug 2017 and closes at 23:59 NZST (UTC +12:00) on 01 Jul 2019.

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  • New Zealand registered charity
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