Stage Four Lipoedema and Lymphodema is taking my Sisters life. Please help her

$2,985 donated

Given by 41 generous donors in around 6 months

Lipoedema stage 4 causes constant pain,immobilisation, skin breakdown and in the last month breathing is now compromised.

Waikato

Five years ago after years of seeking a diagnosis for her condition, Glenys was finally diagnosed with stage four Lipoedema and lymphodema. Lipoedema is a long-term (chronic) condition where there's an abnormal build-up of fat cells in the legs, thighs and buttocks, and sometimes in the arms.The condition usually only affects women, although in rare cases it can also affect men.There are few treatments available and unfortunately these are overseas and very little is known about this disease in New Zealand.

Presently Glenys is living in constant and increasing pain. Her mobility and independence is worsening and her latest battle is that the lipoedema is moving up her trunk towards her diaphragm. Over the past few months Glenys has suffered a number of pneumonia bouts, has increasing breathing difficulties where she has had to take prednisone , which is exacerbating this condition.

I want to help fund Glenys to attend the Gold Coast for the "Being the Best We Can Be" Conference. Attending this conference will allow Glenys, to continue her own research she has made into her condition by being able to meet other lipoedema sufferers, sharing their experiences and giving her an opportunity to hear and speak with keynote speakers who will share their knowledge and latest research into the disease and treatments

Lynette Tischhauser's involvement (page creator)

I have watched my lovely older sister battle with stage four Lipoedema and lymphodema for years. After a long battle to get a diagnosis as many Doctors are unaware of this disease . At this stage ,in the last six months, she is debilitated with pain, decreasing mobility and this disease is now affecting her breathing. So I have decided to set this up for my sister. To give her the opportunity to attend the Australian Lipoedema conference in Gold Coast where we are hoping the experts in this field can give her a glimmer of hope.

Use of funds

The money raised will be paid to Glenys Elkins, for flights, use of equipment and costs of conference in Gold Coast. Accommodation has been provided by family.