Please help us wrap around this family and give Magnus the opportunity to be the big brother that he deserves to be.
Wellington
Magnus is a super happy, bubbly 3 year old that has just become a big brother with a life time of dreams ahead of him, when last month his family was delivered the devastating news that he has a 9cm neuroblastoma growing from his right kidney area which has spread to other areas of his body.
This amazing family are now navigating the fact that their toddler has stage four neuroblastoma which is an aggressive and rare form of childhood cancer, 38% survival rate. There are only about 12-20 children diagnosed with this cancer in NZ every year. The most innovative treatments (e.g. Proton therapy) and some promising drugs are overseas and very expensive.
Treatments here in NZ include, intensive chemo, radiation therapy, stem cell transplants, surgery and immuno therapy. Generally all these treatments can have severe and long lasting side effects which can include hearing or vision loss, organ damage, or developing secondary cancers or leukemia at any time.
Magnus and his family would love to be able to explore overseas and new treatment options and buy products for Magnus that will enhance his comfort and recovery.
Please help us wrap around this family and give Magnus the opportunity to be the big brother that he deserves to be.
We are the Childspace community that surround Magnus and his whānau.
The money will be used to be able to afford the best available overseas treatment, drugs and technology. This includes surgery, proton therapy and immunotherapy (Naxitamab), as well as products to ease Magnus’ pain and enhance his recovery.
Magnus is a big brother! 2 May 2025
Hello everyone,
We hope everyone living in New Zealand is safe and well during this extreme weather.
We were supposed to fly to Christchurch yesterday for the assessment scan, but the storm crossed our plans. 🫠 Fortunately the team in Christchurch was able to reschedule it for next week.
We're super happy to announce that Magnus is a big brother now. His little sister Aurora was born over Easter. It's the best thing in the world, to see how he dotes over her! 😍 He's so helpful and loving, assisting with dressing her and nappy changes and it's so cute how he wants to hold her the moment he opens his eyes.
We still have to manage health challenges that Magnus is facing since his operation, including persistent diarrhoea and malabsorption of nutrients which means he can't gain weight back. After 8 weeks we feel we are finally getting on track to getting some answers.
Life as a family of 4 is beautiful and chaotic. We are in the process of finding our new routine with our lovely baby girl and need to figure out how we can navigate logistics around appointments, treatments and travel going forward. We're very fortunate to have some family support around at the moment. ☺️
Thanks so much for your continuous support and contribution in any shape and form. Your messages fill our hearts every time. 💕
Your message will be displayed on the page and emailed to the donor.
Your new message will also be emailed to the donor.
Saving a blank entry will delete the current comment.