Support our amazing friend Kelly McNabb to fight her brain tumour

$100,758 donated
Given by 732 generous donors in around 8 months

We're raising funds for Kelly's best treatment option to fight her brain tumour, a drug called "Avastin", which is not funded in NZ.

Manawatu / Whanganui

Kelly is a warm, bright and bubbly lady, who is deeply loved by her husband Brendon, and her 2 children, Daniel aged 3, and Jacob aged 2.

Last December, Kelly (who is only 36 years old) was diagnosed with a high grade glioblastoma (fast growing brain tumour). Kelly is battling hard for more time with her boys, with 2 brain surgeries, radiotherapy and chemo, and a great positive attitude. Kelly has already had nearly six months of temozolomide chemotherapy but unfortunately the tumour did not respond to this.

Kelly is an astute clinician and has carefully researched her options for improving survival time. She investigated the option of going to Duke University in USA to participate in a clinical trial showing promising results with her type of tumour but due to clinical and logistical reasons this is not an option at this stage. The Deputy Director of Dukes, who is an international expert in the field, suggested that her best treatment option now is a drug called "Avastin", which is not funded in NZ for brain tumours and costs $7,885 per dose. It is administered fortnightly until it either stops working (she will be having regular MRI scans to assess this) or for 104 weeks.

Trial data on the effectiveness of Avastin was published in 2014 and has shown benefit for recurrent brain tumours like Kelly's. It is believed to be effective in extending survival time in 40% of people with glioblastoma tumours compared to 10% with standard available treatment. It works by cutting off the blood supply to the tumour to stop it from growing rapidly. Another benefit is that it not only works on reducing blood supply to the tumour but also reduces swelling in the brain which will improve Kelly's quality of life and improve her ability to function as she goes about daily living with her family and life in general.

After a lifetime of caring for others as an ICU Nurse and volunteer Brownie Leader, now it's time for us to care for her.

We know that Kelly has many friends within the nursing/medical/dietetic and wider health professional community, not just at MidCentral Health where she worked for many years as an ICU Nurse, but also around the country, as she was also a Flight Nurse and made friends wherever she went. More recently Kelly has worked with the Diabetes & Endocrinology Service making a significant contribution to the care of people with diabetes, especially improving the quality of care provided when people with diabetes are admitted to hospital.

We know there are many friends within GirlGuiding, not only Leaders, but also families of girls that she inspired during her nearly 17 years as a volunteer Brownie leader. We know there are many Gang Show friends from her years on the stage, performing as part of that fantastic tradition. We know that Kelly's husband Brendon, also has many friends and supporters within the Army community that he has gained over his 25 years of service.

Now's the time for us all to band together, and to give a little bit to fund Kelly's treatment costs.

So, dig deep and share widely across all our contacts, and let's show Kelly that she has a special place in our hearts.

Kelly's Support Team's involvement (page creator)

The family and friends of Kelly are involved any way we can to support her in this battle.

Read more

Latest update

February 2016 update  25 February 2016

Here's another update from the amazing Kelly...

Apologies for the late update.

As you know I had my third brain surgery (12 months to the day of my first) in December after the surgery day being bumped along for a couple of days in Wellington. It’s a shame there was someone more needy than me, as it means someone must have had a rough day. Remember that every time your surgery gets bumped, it’s possibly because someone else needs your spot more urgently.

We made the most of the time as a family and spent some time tripping around Wellington until my surgery. Meant another week of accommodation to find, but Brendon managed!

Surgery itself went well, it’s taken me a long time to recover this time though. A lot more fatigued.

The Avastin is on hold at present – there had to be a period of time before and after surgery of not giving it due to the risks associated with wound healing etc.

Unfortunately I got a clot in my leg also, after surgery, so am now on a drug called clexane to stop my blood clotting as quick.

I have completed another treatment phase of Radiotherapy (28 doses), with no chemo. Avastin could be used with radiotherapy but it makes you more sensitive to the radiotherapy, which is something that is not ideal in my situation as it is my second time around of having radiotherapy. It might be too much radiation to the brain.

I have had 2 MRI scans of my brain since surgery, which have been ok, but we know it is aggressive so I’m keen to get the next phase of treatment underway. I hope to meet with my medical oncologist very soon to make a plan. We are keen to look at immunotherapy options in addition to the Avastin if need be.

Thank you for all your ongoing support. The wee boys have done well coping with the changes in routine, and Brendon is recovering well from his shoulder surgery.

The presentation to PHARMAC went well, but it could be another 6 months before we hear anything yet! Lets hope we can get Avastin funded for those that may benefit from it!

Your messages are truly welcome, but I may be a little slow at replying depending on the day! I’ll update you further once I have something to report.

Share this update

Read 9 more updates

Read more

Latest donations

NZ Army Waiouru WO/SNCO Mess
NZ Army Waiouru WO/SNCO Mess on 11 Apr 2016
Member donations
$1,490.10
Nat xxx
Nat xxx on 29 Mar 2016
Private
Stephen
Stephen on 26 Mar 2016
Private
CB Norwood Distributors Social Club
CB Norwood Distributors Social Club on 16 Mar 2016
December 2015 "Christmas Lights" fundraiser
$151.20
Guest Donor
Guest Donor on 05 Mar 2016
Thinking of you and your family. Hope you get the treatment you need.
Private

Who's involved?

Kelly McNabb's avatar
Paying to a verified bank account of Kelly McNabb
Page Moderated
The page has been checked by our team to make sure it complies with our terms and conditions.

Gallery

Page Q&A

One question has been asked already. Check it out and ask yours here.

Any concerns?

Report this page
This page was created on 22 Aug 2015 and closed on 30 Apr 2016.