At only 14 years of age, Grace urgently needs a liver & pancreas transplant to save her life, & will be apart from her family for 4 months.
Let me introduce you to Grace... at just 14 years of age Grace is one of the most bubbly, energetic, positive, selfless people I have ever met, Grace has a heart of pure gold & with the support of her parents Sean & Jess, Grace has established her own Charity called "Grace's gifts" where she spends her free time fundraising to help families who unexpectedly find themselves hospitalised & provides them with emergency care packages to get them through their hospital stays.
What alot of people don't realise is that Grace herself suffers from the rare life limiting condition, Cystic Fibrosis, the ONLY effective treatment available for this disorder is currently NOT funded by pharmac & at a cost of $330,000 per year her family have been unable to provide this for Grace.
Subsequently, Grace's body has been irreversably damaged by cystic fibrosis, in Grace's case this has resulted in severe permanent unreversable damage to her liver & pancreas..... Grace's health has now deteriorated to the point that, in order to save her life, Grace urgently needs a liver & pancreas transplant. As of last week, Grace is officially on the transplant waiting list, her life literally depends on it.
Grace & her family are about to embark on one of the most stressful and terrifying challenges of their lives.... I want to try and alleviate some of their anguish by reducing their financial stress in order to allow them to travel to be by Grace's bedside while she undergoes her transplant & recovery.
I am a close friend of Grace's parents Sean and Jess.
All money raised will enable Grace's family to be by her side to support her while she undergoes and recovers from her life saving transplant.
Grace's NG Tube 10 June 2022
Our beautiful girl, had the tube placed that she so much hated the thought of. But we have come to the point that she can no longer maintain her weight by eating so we need to supplement it somehow. I never knew it could be so hard to help someone understand their mortality, especially if it is something in others eyes so tiny. Grace in her mind would have preferred to have an invasive gastrostomy over a tube. I will never admit to knowing how she feels and her reasons, but this one has left me stumped.
I will not be another flower, picked for my beauty and left to die. I will be wild, difficult to find, and impossible to forget.
Thankyou Steve ❤
Thankyou very much ❤❤
Thankyou cuzzy ❤❤
Thankyou so much ❤❤