My aim is to fundraise 4 medical treatment in US to cure GSD I was told that unless I get liver cancer I won’t get a liver transplant in NZ
Canterbury
I was born with a gene missing which causes my liver to fail to carry out normal functions.which causss low blood sugar levels daily. Placing my life I. Danger and at risk of inducing a coma or even death. Because of Glycogen Storage Disease type 1a. I don’t have the mechanism to prevent low blood sugars. My liver and kidneys store the Glycogen but can’t release it therefore my liver can’t convert the glycogen back into glucose to fuel my body’s needs. Glucose comes from dietary sources then glucose is stored as Glycogen but my liver won’t release it so I have to eat every two hours. I have an enlarged liver and kidney (&kidney stones) multiple liver tumours nausea, ulcer & gallbladder dyspepsia, endometriosis, osteoporosis, ovarian cysts and blood poisoning and Pneumonia gout just to name a few medical symptoms
My transplant is not covered by health insurance as I can’t get any. And the transplant is not covered by public health system as they will not do it unless I get liver cancer. Therefore I am fundraising to pay for it to be done in USA
Medical treatment and housing and accommodations costs after after the liver transplant.
Reason for extended date to my page. 26 June 2021
Due to not being able to gain enough donations to fund for my liver transplant/ treatment in USA, I'm extending my page for another year. Thanks for taking your time to read my update.
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