I really appreciate everybodys support threw this rough rollercoaster. Couldn't of gotten threw it without your support so thankyou everybody. We are still having ongoing issues and regular hospital trips
Great news Holly.
Stay strong Tyson
I'm so proud of you buddy weve kept you out of hospital so far love you my little soldier
Today was another big day in hospital. You did so well darling mummy is so proud of you. I hope we get to the bottom of this sooner than later this was your 12th time with going under general anesthetic your so brave my little fighter
Tryed to upload photo but it wouldn't let me :(
We are fighting an ongoing battle for tyson that feels like were getting nowhere
Waiting to be sent to chch hospital again for more tests having regular antibiotics every 3 months threw the portacath
Hey guys tyson can no longer go to preschool as he has undergoing health issues and this virus could really affect him so we are going into self isolation .
The only way I can protect his health is by keeping sapphire and the tyson home from school and away from as many people as possible.
Had hospital yesterday everything went well until this morning the needle was dislodged over night again.everything is out and were repeating the same procedure that was just done yesterday on Monday if the needle dislodges again after Monday we will be sent to chch hospital.have a chest xray due in couple of days to see if the portacath has moved at all. I just want this to all be over it's really stressful on Tyson and everyone else. Your so brave little man
So we've had a horrible week so far with antibiotics Monday it's all happening again threw gas and with anesthetic so hopefully we can secure the needle and all will go well for our 2 weeks of iv antibiotics. Very nervous because we usually have to go to chch for anesthetic but greymouth are going to do it. Love you wee man
Today we got taken to hospital agian due to the portacath bleeding and the needle being dislodged. Had to have a nasal sedative to attempt to get the needle back in which didnt work tryed twice area is to swollen so having to wait till Tuesday to try again otherwise were sent to Christchurch for a new portacath :( it's been a long day were both so tired.
Tyson is getting hooked up tomorrow again for 2 weeks of iv antibiotics threw his portacath mummy is proud of you son love you lots your so brave wee man
Still pale and hasn't got colour in abit of pain but doing really well
Portacath instilled went really well Tyson wasn't coping after surgery tonight because he was confused and really upset all is settled now and Tyson is asleep for the moment
We're heading over to Christchurch within the next month as Tyson is having a portacath put in. Had some genetic testing come back so just getting my head around some of the answers thank you everyone for all your support please keep sharing the more support I get the easier it makes everything
Tyson has started to go down hill again quite quickly. Another trip to Christchurch is comming up I just want my boy to be healthy and better it breaks my heart knowing I can't.help him
So far were going good have quite a few more tests to do and still waiting on results have to go back to ent in near future for an assessment to figure out what the plan of attack is for his short jaw and long tounge thank you everyone for supporting us
Great news your at home tyson.
Good luck with the results.
All the best
Steve Holmes
Happy birthday little man sorry your in Christchurch in and out of hospital I Love You xoxo
Happy birthday for the 10th August tyson.
Sorry it's late
Operation went well just have a few things to wait and see about in the long run showed some things were not sure about yet but time will tell
Currently at ronald McDonald house waiting for operation tomorrow beginning to.become very very nervous
5 days to go till we leave to go to Christchurch I'm feeling very nervous and emotional thank you everybody for all the support and kind words
We have dates confirmed for tysons operation 1/8/19 we will be traveling to Christchurch on 31/7/19 I really appreciate everything That everybody is doing for us it's amazing thank you all
