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Willows Journey: Make Everyday Count

$3,295 of $20,000 goal
Given by 42 generous donors in around 4 months

Raising funds to enhance Willow’s quality of life by providing essential therapies, equipment, and unforgettable experiences.

Bay of Plenty

Willow is a brave four-year-old living with Mucolipidosis, a rare and life-limiting genetic condition that affects her muscular, nervous, and skeletal systems, impacting nearly every aspect of her life— from mobility and communication to her overall health. Despite these challenges, Willow’s smile lights up every room, and her resilience inspires everyone around her. Her whānau faces daily hurdles, managing complex care routines, countless medical appointments, and the emotional weight of knowing how fragile her time with us may be.

To support Willow and her whānau, we’ve created this page to help raise the funds needed to enhance Willow’s quality of life. The money will go towards specialized therapies, essential mobility equipment, and unforgettable experiences that will bring joy to Willow’s days. In addition, we’re organizing a special kaupapa called "Walk for Willow" to further support her care.

Willow and her whānau face unimaginable challenges each day, balancing complex care routines and the emotional weight of her condition. But with your tautoko, we can bring light into their lives. Please consider donating and follow Walk for Willow on Facebook or Instagram to stay updated on her journey and the upcoming kaupapa. Together, we can make everyday count for Willow and show her whānau they have a community standing behind them.

Ngā mihi aroha,

Laura

Laura Dargaville's involvement (page creator)

I am a proud Aunty of our beautiful Willow. After three years since her diagnosis, I’ve gathered the courage to ask for community help. Willow has taught me to make everyday count, and I strive to live by that lesson every day.

Use of funds

Enhancing Willow’s quality of life with specialized therapies, mobility equipment, and joyful experiences.

Funds to be paid to Willow's mother Eden.

Other page links

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Latest donations

Takiri
Takiri 12 hours ago
$100
Bluz
Bluz 6 days ago
Private
Rich
Rich 7 days ago
$50
Epenesa
Epenesa 7 days ago
Kia kaha, kia māia, kia manawanui Willow.
$50
Rosie
Rosie 7 days ago
💜 proud of you Aunty and BB team 💜 Willow you are such a special girl and bring joy not only to your whānau but also to those who you have never meet! Keeping this eyes sparking!
$50

Who's involved?

Laura Dargaville's avatar
Created by Laura Dargaville
Eden Tilby's avatar
Paying to a verified bank account of Eden Tilby
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This campaign started on 11 Aug 2024 and ends on 11 Aug 2025.