To help pay bills etc so partner can take time off work to be by her side while she goes thru treatment
Nationwide
Kiaora koutou, my name is Donna and me and a friend of mine are wanting to help out a friend (Sammie) and her family who has just been given news no1 ever wants to be told after over 30 days of being in hospital already ...
This is her story...
Young mum with 5 beautiful kids started suffering with seizures about a month ago which put her in and out of hospital. After having scans etc the doctors had found something on her brain so went in and took biopsys to send away. Weeks have gone by with test after test, her getting sent home and ending up back in a few hours later, her becoming forgetful and after getting results today she has been told she has a very rare case that 1 in 5 million people get ... her doctor today said that she is the 2nd person he has seen with langerhans cell histiocytosis in his career... she is set to start chemo on monday which is why we are wanting to raise some money so they dont have to the xtra stress of worrying about the bills and so her partner can take time off work to be by her and deal to the children...
A beauiful friend of mine that does not deserves this 😭
To help pay bills and other money stresses
Updates 6 June 2021
The day to day Life of an Adult ( Parent with 5 children)
with Langerhans Cell Histocytosis
• For those of you who would like to know more about Langerhans Cell
Histocytosis please Google this.
• As I now have problems with my memory and don’t always remember
correctly the information I have been given.
• Plus if you were in my position, I believe you would also choose to deal
with the here and now and not borrow worries for the future.
• The first problem is, Langerhans affects my brain and causes seizures to
happen with absolutely no warning. This is the most immediately
threatening symptom and not the only one.
• So this means that I cannot be alone with my children all aged 10 and
under at anytime, I must have an adult support worker with me 24/7.
• Can you imagine not being able to pick and hold your 17 month old
when he cries in case you have a seizure and drop him or fall on him??
• We used to be dairy farming which was good for our family financially
but not good for the health of our family as a whole, so my partner has
changed his profession and is in a good job that he enjoys working with
good people and has more time to spend with all of us as a family. But at
a much reduced income which we coped with till this health issue struck.
• But now we all have my diagnosis to deal with, not just me but all my
family dealing with the unknown side effects of this every day.
• I want to be at home with my family as much as possible but as I said
before this can't happen unless there is an adult support worker with me
at all times. Otherwise I would need to be in hospital 24/7. Also not good
for any of us more time and money spent, toing and froing from the hospital with the kids only a couple at a time so logistically it’s just adds
to our current nightmare.
• We are caught between a rock and a hard place, because we don’t
qualify for any assistance due to our previous income and I can't deal
with the paperwork any of the agency's who could help require.
• It does not help our family at all for my partner to give up his job and go
on a benefit so he can care for me full time.
• We like everyone else out there struggle daily with keeping up with the
day to day of life on one income we would be so much worse off on a
benefit.
• We need help to pay someone to come and be with me and the kids so
my partner can keep working, its an awful truth that if he gave up work
we would probably.…but not certainly qualify for more assistance but
that would not be good for any of us as I have said before.
• I want to thank everyone who has help us so far. From my heart to
yours, you are making this a little easier for all of us to cope with
everyday THANK YOU!!
• We as a family are in this for the long haul and wont give up fighting this
immune syndrome that threatens me and my family.
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