I am looking at raising money for my daughter's conference. These kids all have a rare syndrome - WHS. This will be the first NZ conference
Marlborough
Wolf Hirschhorn Syndrome, otherwise known as 4p minus.
A conference is held every other year, often families struggle to get to these conferences, which are valuable for the families.
This will be the first NZ conference and my husband and I aim to help these families have the best weekend that Marlborough can give them with your help!
We both love seeing our daughter have fun and living life to the full - this isn't always possible! However, we intend to make sure that this weekend will do just that!
Let's help create Families making happy memories!
I am involved because I am Zoe's mum.
Currently embarking on challenge number two - dry july! with my husband!! also working on challenge three and four - Woodbourne half marathon and the Seddon School Tussock Run! - back to back events in August!!! Argh...
Thank you to everyone who has donated, so generous of you and very gratefully appreciated. If you would still like to donate - this page is open through to mid-October!
The money will be put towards as much of the conference as I can - we will be hosting other families coming over from Australia as well as any other NZ families. None of this would be possible without the generous help and support of friends/family and the community. Many thanks in advance.
Your message will be displayed on the page and emailed to the donor.
Your new message will also be emailed to the donor.
Saving a blank entry will delete the current comment.