Little Princee (they way she pronounces princess) Mia passed away in 2013 aged 3 to a rare Lysosomal Disease called MPS1 or Hurlers. Ethan, Hayley and I are hoping to raise some money to help LDNZ. In Mia’s memory we are running in the ColourRun on March 30th so please help us raise a little bit to help other families.

Lysosomal Diseases New Zealand is a charitable trust dedicated to improve contact between families affected by lysosomal diseases within New Zealand, and supporting research into the causes and treatment of lysosomal diseases and improvements in the clinical care of affected people.