Help Harry to Walk One Day

Help Harry to Walk One Day

Hi Everyone

We are setting up this page to help the amazing wee ‘Harry Finch’ who has been diagnosed with Cerebral Palsy since he was 6 weeks old. Ollie (his twin brother) and Harry got Twin to Twin Transfusion Syndrome (TTTS) when they were in Bex’s tummy which caused them to be born prematurely at 29 weeks. Unfortunately Harry had 2 seizures when he was born, due to the stress he was under from being the donor twin.

He has Spastic Diplegia Cerebral Palsy in the muscles in his legs, making walking and other things difficult and sometimes painful. Harry has just turned 3, but because of this disability, despite how smart and determined he is, he is not yet able to stand or walk independently.

Hayden and Bex (Harry’s parents) have recently learned that he has been accepted for surgery at St Louis Children’s Hospital in Missouri, USA called Selective Dorsal Rhizotomy (SDR), which will eliminate his spasticity in his legs and allow him the best chance to walk independently – totally life changing!!!! The journey is very expensive and will cost the family approximately $150,000. Hayden and Bex will do all it takes to give Harry the best opportunity to walk, play and do all the things that his twin brother Ollie and his friends can do.

It is highly recommended that the surgery is performed between the ages of 2-4 for this surgery to be of benefit. Harry would need intensive physiotherapy for up to two years post op, 5 days a week for the first 6-12 months following surgery and then would hopefully reduce over time.

Unfortunately, the surgery and physio to follow is not funded here in NZ, so to make this a reality we need to raise $150,000 and get him to America as soon as we possibly can. (We are still waiting to hear the date of the surgery)

Harry is an incredible wee man, who inspires all of us every day with his strength, determination, friendly, kind and loving personality. He bravely faces his challenges every day with a happy, determined spirit. We couldn’t be prouder of him. Harry tells his mum and dad, on a daily bases that he “wants to walk one day”.

If you feel you can afford to “Give A Little” to get Harry the help he needs, you would really be helping to change Harry’s life.

Best Wishes

Emma Hammond (Harry’s Aunty)

Alun (AK) and Sharla Kennedy (Close friends of Hayden and Bex)