Rare Disorders NZ (formerly NZORD)

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Rare Disorders NZ provides New Zealand's central starting point for information about rare diseases.

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  Wellington

Rare Disorders NZ is the connector hub for people affected by rare disorders and their families to find essential information and links to rare disease support groups.

Rare Disorders NZ is the only umbrella group for rare disorders in New Zealand and provides a strong common voice to advocate for an equitable healthcare system that works for the 300,000 Kiwis with a rare condition - around 6% of the population.

CALL FOR ACTION

Rare Disorders NZ, and the support groups we represent, are calling for acknowledgement and awareness of the common challenges faced by people living with a rare disease, along with a commitment to address these challenges through the development of a New Zealand National Rare Disorder Framework. We want inclusion of patients and clinicians in decision-making processes, consideration of a wider definition of patient quality of life, and impact of rare disorders for carers.

More about us

Rare Disorders NZ is the connector hub & collective voice for people affected by rare disorders and their families. We advocate for an equitable health system that works for the 300,000 Kiwis with a rare condition - around 6% of the population.


Latest donations

Holly
Holly on 11 May 2020
Completing the run 5km, donate $5, nominate 5 challenge on Instagram, decided to up the donation to 10 because I love what you guys do :)
$10
Rare Disorders NZ (formerly NZORD)

Awesome Holly, thanks for your support!

Rare Disorders NZ (formerly NZORD)
Adam
Adam on 20 Apr 2020
$10
Rare Disorders NZ (formerly NZORD)

Thanks for your support!

Rare Disorders NZ (formerly NZORD)
Private Donor
Private Donor on 30 Mar 2020
$100
Rare Disorders NZ (formerly NZORD)

Thank you for your support!

Rare Disorders NZ (formerly NZORD)
The Wellington Improvisation Troupe (WIT)
The Wellington Improvisation Troupe (WIT) on 30 Sep 2019
From WIT's Micetro improv show on September 29th at the Powwow Room in Wellington - thanks to the cast and crew, and everyone who came along!
$220
Rare Disorders NZ (formerly NZORD)

Thanks for a great show and for your support of the rare disorder community!

Rare Disorders NZ (formerly NZORD)
Rosemary
Rosemary on 24 Sep 2018
For Brittany's amazing marathon running fundraising efforts for a great cause.
$50

Who's involved?

Rare Disorders NZ (formerly NZORD)'s avatar
Created by, and paying to a verified bank account of, Rare Disorders NZ (formerly NZORD) (Charity)

Registered Charity A Registered Charity has legal recognition under the Charities Act 2005.
Tax credit Donations of over $5 are eligible for a New Zealand charitable giving tax credit.
Page Moderated The page has been checked by our team to make sure it complies with our terms and conditions.

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