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Help Heather!

  • Update from Heather - today

      28 September 2015

    Lifes sure been a bitch this last week. Finally got off these horrible steroids but ended up with an another ambulance ride to hospital on Tuesday. Didn't have a seizure this time but lost all speech and went numb again on this right side and it happened so fast. I didn't recover as fast this time so its been a trying few days and I'm still struggling with words...and now I'm back to square 1,back on 8 steroids a day and told that my brain still has heaps of swelling which is quite rare this many weeks after radiation so I have no idea what the next step is. And just my luck that my oncologist is overseas for another 2 weeks.

    Ive gained near on 20kgs, my anxiety has shot threw the roof again, I'm dreading going back tomorrow because of it but I have to! this has def made me realise how fragile life is. If I couldn't go to work I'm not sure how I would manage to survive...

    A HUGE thank you to all that have helped with out this week specially with the little one xx

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  • Update from heather 07.09.15

      28 September 2015
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    1 month of chemo and anti nausea pills! #startingtonight #herewegoagain

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  • Update from Heather 07.08.2015

      11 August 2015

    So on advice by a psychotherapist we told the kids today. Ayla cried which made me cry then she asked if I was going to die...broke my heart!

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  • Update from Heather 07.08.2015

      11 August 2015

    Feel like I have taken 2 steps forward and 3 steps back. After weeks of steroids I have gradually weaned down to 1 a day.last night I had a horrible headache all night and woke up feeling weak. Didn't go in to work today thank god! But gradually lost sensation does the right hand side again. Now I'm back on 6 steroids a day with hope my condition will improve by Monday. Didn't have a seizure but my talking and texting is shit again but not as bad as it was....

    Heather x

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  • Update from Heather 03.08.2015

      11 August 2015
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    So i havnt written in a while. ive put on a whole lot of weight (last time i checked was about 8kgs) but i only got a few more days on these horrible steroids. Feeling a little disheartened about my last hosp appointment and hoping i get some better answers this week. While cleaning up today i found my old cancer beads and thinking about getting in touch with starship to see if i can start collecting them again for ayla.

    heather xx

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  • Update from Heather 21.07.2015

      11 August 2015

    Steroids you suck!! Thank you for the 5kgs of unnecessary weight you have helped me gain in the last 3 weeks! frown emoticon feeling a bit nervous about my hospital appointment tomorrow. Have no idea what the next step is...

    Heather xx

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  • Update from Heather 16.07.2015

      11 August 2015
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    I got this tat about 2 years ago to remind myself that it really is ok not to be ok. And it is ok to ask people for help! I suffered severe anxiety and panic a few years back and I honestly don't know If I could even say that I believed in it if I hadn't been through it. Unfortunately it's come back but I now recognize the signs and am working through getting on top of it again! the other one is the matching one me and my sister got.

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  • Update from Heather 16.07.2015

      11 August 2015
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    I recently came across this book that I'm sure I bought at an opshop a few years ago. I opened it up and this was the first page I read! Bawled my eyes out then got up and got back on with it. It's a page I keep coming back to when I'm not feeling very strong anymore,it reminds me I'm here for a purpose and though I may never know what that purpose is,there's a reason and a life lesson to learn somewhere here!

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  • Update from Heather 16.07.2015

      11 August 2015

    Just wanting to post an update,now that I can finally get my words down again and I just want to say a HUGE thank you to so many people that have been there supporting me over the last week or so!

    From the loveliest nurse I've ever met in hospital barry,the girls for coming to see me, hollie (at lady i happened to cross paths with recently who's support had been overwhelming), work colleagues and my boss who I probably gave a hell of a fright to the other night at work but have kept me going! My daughter's best friends mum who has also been an overwhelming support to me at the moment. My partner for being there by my side no matter what (he left the hospital at 1 and was back by 8 and he was the only one who could understand me!) And his boss for allowing him to take the week off with me!To my oncologist for fitting me in to see him and to my gp for calling me to see how im doing!and to anybody that has sent me a message,dropped through, called me!

    As scary as all this has been knowing the amount of people behind me that are all pushing me for me makes it not so scary anymore. I am currently doing ok! Back at work but my anxiety has encreased 10 fold! Im on about 15 pills a day and just waiting to see the oncologist again on the 22nd to see wether this tumour is continuing to grow or not.I will update as soon as I have some more answers or know what the next step is.

    Thanks again guys!

    Heather xx

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  • Update from Kayley 06.07.2015

      11 August 2015

    Big sis with another update, been constantly keeping in touch with Heather and she's at home and continuing to improve which is fantastic! She can speak, still having a little trouble writing which I have to say is slightly entertaining.....her messages make total sense to her, but only her.

    She was meant to see her Dr and start chemo on the 26th of July but instead will be meeting with him tomorrow so we should have further info then.

    There's a few things that have come out of this, being that Heather will probably have to drastically cut back or stop working all together and now cannot drive for the next 3 years.

    She's going to sell her car so that she has some extra funds, and who knows maybe her wedding will have to be bought forward....we will see.

    I'm still feeling pretty useless over here in Italy and am doing tiny little bits to feel like I am contributing in some way. I'm currently doing Dry July (sober for the month of July, not easy when it's summer here and I'm in the land of great wine!). It's pretty cool though because it's a Kiwi and Aussie thing so when people ask why I'm not drinking this month I get to explain that Kiwis and Aussies are awesome like that and we do things for various causes, this particular one being for cancer.

    If you feel like donating to help Heather out, you can do so via the Give a Little page I've set up for her.

    And please keep up with all the posts and messages of support, although she can't respond by writing just at the moment I know that she reads them all and is overwhelmed by all the love and support!

    ?#?helpheather? ?#?keepstrong? ?#?fightcancer?

    https://givealittle.co.nz/cause/helpheathermoore

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  • Update from Kayley 05.07.2015

      11 August 2015

    As Heather's big sister it really hurts to be writing this update.....unfortunately last night Heather suffered her first ever seizure thanks to this horrible tumor. She lost the ability to speak, went numb in her hands and face and lost some of the function of her mouth. And I'm also writing this as she is having trouble writing too.

    It's similar to what happened after surgery last time, all the right words are stuck in her head she just can't get them out.

    Anyway and ambulance was called to collect her from work and she was admitted to hospital overnight. The good news is that she has just been discharged! And her speech is slowly improving, as is some of the numbness. The doc's did a scan but can't tell us too much. Best case scenario it was due to swelling from radiotherapy, worst case scenario the radio didn't work and the tumor has grown and is putting pressure on these parts of her brain.

    For now she has been discharged and prescribed epilepsy medication to hopefully prevent any further seizures and will have to wait to meet with her doctor for more of and idea as to what went on and where to from here.

    She had finished her radiotherapy and was having a few weeks break before starting chemo later this month.

    Since she has now had a seizure she won't be allowed to drive for 3 years which sucks balls so will have to rely on others to get to appointments, get her daughter to and from school and do other daily tasks such as shopping etc.

    Let's all send heaps of positivity her way, and also take a moment to remember how precious life is! Heather and I both got matching tattoos years ago before the first operation, hers is on her arm and mine on my foot so we are constantly reminded that "each day's a gift and not a given right"

    Love you little sis!

    ?#?helpheather? ?#?fuckcancer? ?#?fightcancer? ?#?staystrong? ?#?eachdaysagift?

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  • PET scan - my radioactive brain.

      24 June 2015
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    The bright blue dot in this scan is obviously the tumour and the white patch above it is where the previous tumor was removed.

    The new tumor looks quite big but apparently it's only around 5 mm.

    Here's hoping its no longer there or at least a whole lot smaller when it comes time for the next scan!

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  • F$@% you cancer!

      24 June 2015

    F$@% you cancer! I hate you soo much!! Day 7 of radiation done, only 3 to go but its been such a shitty day today! Ive had headaches all day and am crazy emotional. 2 people I have been talking to today have come up and just hugged me. Broken down about 5 times this afternoon and even had a cry with the little one before while trying to be strong and reassure her. Im angry today, angry about what this stupid disease is putting us all through! And so mad that there is nothing I can do about it....?#?helpheather?

    Heather xx

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  • Update from Heather

      9 June 2015

    So the news is in! Radiation officially starts tomorrow for the next 10 week days! I'm not ready but then I don't think I ever will be....just want to do another big thank you to all who have supported me on this journey so far!specially my gorgeous friend (you know who you are) who texts me on the daily just to say she's thinking about me! also want to say a big thanks to a family friend for his super kind donation! Aswell as everyone else who again has messaged,liked and/or donated since the last post. You don't understand how much it means to me!! #towarwewillgo #helpheather

    Heather xx

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