Support our friend and colleague Justin McArthur and his family, as he recovers from the devastating effects of Guillain-Barré Syndrome.
Wellington
Our Roasting Manager, Justin McArthur, has been with Coffee Supreme for over 16 years and is our longest serving staff member in NZ. He is well known and respected in the coffee industry both here and abroad, and has played a sizeable (and mostly behind the scenes) role in shaping the standard of the industry in NZ.
In November 2014 Justin was rushed to hospital after waking early in the morning with full body paralysis. He has been under the weather with what he had jokingly described as, “death flu”, when his illness took a turn. As his auto immune system fought off the virus it then continued to attack his nervous system.
He was admitted to hospital just as his breathing was affected. Medical staff were able to immediately put him on assisted breathing which saved his life. He was diagnosed with Guillain-Barré Syndrome.
Guillain-Barré Syndrome is a disorder in which the body's immune system attacks part of the peripheral nervous system. The first symptoms of this disorder include varying degrees of weakness or tingling sensations in the legs. These symptoms can increase in intensity until person is almost totally paralyzed – this is what happened in Justin’s case. The disorder is life threatening - potentially interfering with breathing and is considered a medical emergency. Most individuals do recover from even the most severe cases of GBS, although some continue to have a certain degree of weakness. It can strike at any age and both sexes are equally prone to the disorder. The syndrome is rare, however, afflicting only about one person in 100,000.
Justin is in Intensive Care in Wellington Hospital and receiving outstanding care. At day 77 he is still paralysed with only limited movement in his neck, face and shoulders. He can communicate through a basic letter chart and is making progress everyday, but has lost almost a quarter of his body weight and will have a long road of recovery and rehabilitation ahead of him.
Bria, Justin's partner and amazing mum to Johnny (7) and Alby (2), is tirelessly orchestrating visits from family, friends and colleagues, and driving in from Plimmerton each day to visit Justin in ICU.
Our aim is raise enough money to take Justin’s mind off his family’s wellbeing and focus solely on his recovery. Funds will go towards covering loss of income, general expenses for the family and Justin’s rehabilitation.
Many people have said they want to do something to help, so we thought it would be great to offer a way to help support the McArthurs through Give A Little.
This page will also provide regular updates for all of Justin’s connections from around the world. If there is something you would like to get more information on, don't hesitate to get in touch with tim@coffeesupreme.co.nz.
Things are moving. 17 July 2015
Well, not everything.
Justin has made lots of progress since the last update - he is coming up to 8 months in hospital which includes 140 days in ICU. He has left Wellington hospital and is out in Kenepuru to begin his rehabilitation, he has had his NG and trachea tubes taken out, and is back on solids (including the odd double down and McDonald's shakes - calories are his best friend).
The progress in regaining his movement has been slow from Justin's point of view, but for those of us who see him regularly things seem to be ticking along well. Small things that we take for granted - being able to shift our weight to make ourselves more comfortable, and being able change the channel on a TV (Justin does this with his head) - are significant examples of how things are shaping for Justin. There is more movement in his arms, back and hips, even in his wrists. His face still feels stiff, but he assures me that looking slightly more stern is not something that really worries him.
Physiotherapy two or three times a day is keeping him busy and on the edge of exhaustion, but his voice is strong and clear most of the time and conversation is as free as it ever has been.
It has been great to be closer to home, which means more frequent visits from the boys (which Justin loves) and less driving for Bria.
There have been a few set backs, a trip back to ICU and more recently a couple of weeks in Wellington Hospital's High Dependency Unit. Otherwise things are getting better.
I am still amazed at Justin's strength and positive attitude. He understands that this is going to be a lot of hard work and that it will be very, very, very painfully slow. He is very realistic, but his sense of humour is still there.
I jokingly asked him when he was going to post his next picture on instagram, and he replied,
"I don't know Tim, maybe when I'm not so f**king paralysed." I'm 90% sure it was good natured.
All in all, things are getting better... Slowly.
TN
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