Sweating for Luca and Cystic Fibrosis NZ

In August 2023, Courtney and I welcomed our second child, Luca, into the world. One month after his birth, we were informed that he has been diagnosed with Cystic Fibrosis (CF), which is a rare genetic disorder that affects mostly the lungs, but also the pancreas, liver and kidneys. CF affects around 500 people in New Zealand. More information here: https://www.cfnz.org.nz/

Luca's diagnosis has been by far the biggest test of mine and Courtney's life, but also the biggest reminder about what is most important, being family and health.

In 2024, I've set a goal to get off the couch and set an example for both of my boys to run 5 half marathons and Courtney will be running her first full marathon. We will be aiming to raise awareness for Cystic Fibrosis along the way. I'm running to ensure I'm around to see Luca thrive in his life and see him do it all....

Trikafta is a miracle drug for eligible people with CF and we are lucky that this was recently funded in New Zealand for people over 6 years old. Although this is great, in the US and Australia, this life changing drug is funded from 2 years old. The more awareness and pressure we can provide in New Zealand will ultimately help Luca and others to have this treatment at a much earlier age.

Please donate to this cause, with every dollar going to CFNZ to help those affected.

P.s if you're out running yourself, this song was written about a child with CF. It's a great listen: https://www.youtube.com/watch?v=z0rxydSolwU