24/7 Lockdown

It's going to be even harder after Covid-19 for our members to access the support they need. Many are too unwell to battle MSD for support; many are even too unwell to walk out their front door. The fear is more people will be locked down with chronic illness post Covid-19, so we need to help them now. This is the time to support those who live in #24/7lockdown.

Imagine being stuck in your home 24/7 and not able to go anyplace but the supermarket, pharmacy, or doctors. BUT what if lockdown was your normal? What if you lived with a chronic illness that made every day a lockdown day? That’s right. Lockdown level 4 all the time. Not because Jacinda says so, but because your body says so.

People with ME/CFS & FM often live in 24/7 lockdown when they first get sick. A lot get sick because of a virus, so there may be many new people with ME/CFS after Covid-19.

Imagine being in 24/7 lockdown level 4 with no change in sight?

And imagine that you are really fatigued, not your garden variety tired, I know “we all get tired”, but so fatigued that at times you cannot lift your hand to your mouth to drink water?

And add in pain, the majority of people who live with ME/CFS have pain as well, no not pain that a Panadol can fix, but nerve pain, headaches that make you think your head will explode and body break. All this while being stuck in permanent level 4 lockdown.

What can we do? How can we help these people in 24/7 lockdown long after we have returned to level 1?

We can support Complex Chronic Illness Support, a charity which is trying to help provide resources for our members who are doing it really tough.

We have set up this givealittle page for funding for our members health care needs which are not covered by the government. We will be able to provide extra support for our members who need to see a GP but can’t afford it, need to see the national specialist but can’t afford the unsubsidised fees, need a special diet to help feel better but can’t afford it, need to see any other kind of healthcare professional but can’t afford it.