Back to page

3 month old Emily in need of a liver transplant

  • Emily

      19 September 2022
    Posted by: Kelly Hall
    Main image

    Hey Guys this will be Emilys last update as the page is comming to an end this month.Once again thankyou for the generous donations xx,Huge thankyou to Ayla for starting this,much lovexx,thankyou to the give alittle website...Emily is doing well 🙂 we have the 12month biopsy comming up also other checks in starship but shes a happy 15month old full of life, reaching every milestone with much love from us xx

      0 comments  |  Login to leave a comment

  • Emily

      24 March 2022
    Posted by: Kelly Hall
    Main image

    Hi guys sorry long time no update been busy 🙂 😅 🥴.....Emily is doing really well 😊 we have 5 teeth and crawling all around the house hitting every milestone with a cheaky grin and blowing raspberries😋...we now have doctor visits once a month, fortnightly bloods and monthly bloods ,she dose have a touch of the cmv virus were attacking that with antibiotics and just waiting for it to go!!....were very cleaver with our spoon🤣

      0 comments  |  Login to leave a comment

  • Emily

      28 December 2021
    Posted by: Kelly Hall
    Main image

    Hi guys it was Thursday the 16th phil came back from clinic with Emily with shocking news ,...they said shes doing really well so ,.....we can go home!!!!!we got home onthe 20th so had Christmas lunch at our own table in our house 🏠 😊......we will be going back to starship in January to have the central line taken out of her neck ,Emily will go under again but should only be in Auckland couple of nights (no stay in hospital)we'll have a meeting with the team, just a check her over lol.....feeling very blessed for the emotional and financial support 🥰hope everyone had a happy Christmas xx

      0 comments  |  Login to leave a comment

  • Emily

      6 December 2021
    Posted by: Kelly Hall
    Main image

    Hey guys just alittle update on Emily.....shes doing really well bloods were good today so that means we down to twice a week, we also got rid of the ng tube she had 3 in 5 days the last time she pulled it out I convinced the doctors she didn't need it as shes takeing her meds orally and having bottles and solids yippy just one more line tobe removed from her neck that will take time as its for emergency medication incase of infection, we are loving being together as a famialy under one roof i will never take that for granted again!!happy days and happy holidays to you all

      0 comments  |  Login to leave a comment

  • Emily

      26 November 2021
    Posted by: Kelly Hall
    Main image

    Hey guys Emily is 3 weeks post transplant today🙂 she has been discharged from ward for a trial over the weekend we have many many meds to give her and still working on the feed volume bloods 3 time aweek she is happy tobe out .

      0 comments  |  Login to leave a comment

  • Emily

      14 November 2021
    Posted by: Kelly Hall
    Main image

    Hi everyone Emily is doing really well the docs are happy with everything the new liver the plumbing, just getting the life long medication levels right....what a journey this is, we are truly blessed to have all the emotional and financial support fingers crossed we will be discharged in a couple of weeks to the hotel, we will be in Auckland for another 2 months after..... for blood tests and check ups .....her billyrubens were over 300 before surgery now they down to normal level(20ish) hence the white in her eyes and pink/white baby skin 🙂🥰😊🤗🤪

      0 comments  |  Login to leave a comment

  • Emily🥰 5/11/21

      5 November 2021
    Posted by: Kelly Hall
    Main image

    Hello my good people🙂

    I have a huge update we found a live donor Emilys cousin Courtney shes our life saving angel .......Courtney went in early today and is out in recovery doing very well ....Emily is still in surgery went in 10:30am its now 5:39pm were are still waiting could be up to 12 hours,had a call to say she is doing well 🙂Courtney and her mum in picture 🥰

      0 comments  |  Login to leave a comment

  • Emily

      23 October 2021
    Posted by: Kelly Hall
    Main image

    Hello my good people just an update we are now looking for a live donor as a liver hasnt come available you could say we are in desperate times now😪😔...but shes still smiling 😃

      1 comment  |  Login to leave a comment

    • 30/10/2021 by Rach

      Hey beautiful, are you still looking for a donor? If so what blood type? 🤍🤍🤍

  • Emily

      20 October 2021
    Posted by: Kelly Hall
    Main image

    Play time🤪

      0 comments  |  Login to leave a comment

  • Emily

      17 October 2021
    Posted by: Kelly Hall
    Main image

    Hey guys just wanted to update yas all : we missed out on a liver transplant last weekend as it was more suited to another lil person (meet the grandmother today on the ward) so has definitely gone to a good home 🙂🥰.....um not alot has changed with Emily altho she has put weight on,wich widens the donor pool with every bit of gain 😀she started solids this week and loves it she also loves cartoons go nickelodeon ,BIG shout out to the nurses who are doing a fantastic job here in Auckland starship and putting up with me loosing my marbles 🤣(there's a hole in the bag somewhere)....loving the generosity from you all please keep sharing our give alittle page ❤ means the world to us xx...... the machine on the left is connected 22 out of 24 hours of the day thats the goodies under the black bag .🙂🥰😊🤪🥳

      0 comments  |  Login to leave a comment

  • Emily

      7 October 2021
    Posted by: Kelly Hall
    Main image

    Emily is out and doing well the line is in nutrients and fattening here we come

      0 comments  |  Login to leave a comment

  • Emily

      4 October 2021
    Posted by: Kelly Hall
    Main image

    Emily will have a line put into her neck when the surgeon has a time for her tomorrow or Wednesday(she will go under again)....this is for the nutrients to make her grow as the liver isn't working so this means we are here for a loooonnnngggg time until transplant 😪😶🥴😷.....😊🥰🤗🤪

      0 comments  |  Login to leave a comment

  • Update on Emily's progress :)

      30 September 2021
    Main image

    Kelly Hall

    Emily had all her pre transplant tests and will be on the list tomorrow avo after the whole team have meeting in the morning ....she isn't putting on the weight like they want her too, so maybe they going to put a direct line in for her nutrition as well as feeding tube if thats the case we will be hear until transplant time

      0 comments  |  Login to leave a comment