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....a CHANCE to LIVE is all Jaimee wants.... please help us fund for critical medical treatment not available in NZ

$31,779 of $180,000 goal
Given by 448 generous donors in around 6 months

Jaimee has endured so much for so long; physical & mental exhaustion! If left untreated she will continue to deteriorate & her life will end

Hawke's Bay

Jaimee is 17 & has Ehlers Danlos Syndrome, a rare genetic connective tissue disorder that affects every part of her body; joints, bones, soft tissues, blood vessels & internal organs. As a result she has developed abdominal vascular compression syndromes (AVCS).

She can't eat, drink or receive any nutrients through a feeding tube without suffering from excruciating pain, nausea & vomiting which is being caused from the AVCS. She has lost a significant amount of weight & has become very malnourished.

It's now critical that she travels to Germany for specialized life saving medical treatment & surgery that is not available in NZ. We leave on 9th June.

Jaimee bleeds internally & has been vomiting up blood for the past 5 years, unfortunately she has an abnormal gene that's associated with small vessel bleeds & factor X11 deficiency. Medical professionals have not been able to stop this bleeding in NZ so she'll undergo additional testing & possibly surgery with Prof of Gastroenterology while in Germany.

Jaimee was a talented Artistic Roller Skater & went to the NZ Nationals on 3 occasions. Talented in speech & drama, loved horse riding, singing, music & dance, did several pantomimes with the local theater & was cast as a lead in a short film.

All she wants is a chance to live & to be able to do the things she once loved.

Thank you for your prayers, kindness & generosity.

This page has been created as an alternative to the gofund.me

https://gofund.me/6ab7357a

Use of funds

Funds donated will be used for flights, accommodation, scans, surgery, gastroscopy, and any other medical expense.

Any amount that's raised will go towards anything related to this medical journey even if we don't reach the goal.

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Latest update

Article in newspaper   23 September 2023

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Latest donations

Arlene
Arlene on 08 Oct 2023
$100
Jo Gregory

Arlene, thank you so very much for your very kind donation. It is so much appreciated...Please be sure to check in and follow Jaimees Facebook page for updates on her progress and help raise awareness for EDS and AVCs. https://www.facebook.com/profile.php?id=100092205140928&mibextid=ZbWKwL

Jo Gregory
Jenny
Jenny on 23 Sep 2023
What a cruel disease - good luck with your recovery
$100
Jo Gregory

It is a cruel disease. Thank you so very much Jenny for your very kind donation. It is so much appreciated...Please be sure to check in and follow Jaimees Facebook page for updates on her progress and help raise awareness for EDS and AVCs. https://www.facebook.com/profile.php?id=100092205140928&mibextid=ZbWKwL

Jo Gregory
Maree
Maree on 11 Sep 2023
$100
Jo Gregory

Thank you so much for your generous donation

Jo Gregory
Guest Donor
Guest Donor on 17 Aug 2023
Private
Jo Gregory

Thank you so much for your kindness and generosity. Your donation is so appreciated

Jo Gregory
Guest Donor
Guest Donor on 09 Aug 2023
$20
Jo Gregory

Thank you for your kindness. Your donation is greatly appreciated

Jo Gregory

Who's involved?

Jo Gregory's avatar
Created by, and paying to a verified bank account of, Jo Gregory on behalf of My daughter, Jaimee
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This campaign started on 27 May 2023 and ended on 27 Nov 2023.