Jaimee has endured so much for so long; physical & mental exhaustion! If left untreated she will continue to deteriorate & her life will end
Hawke's Bay
Jaimee is 17 & has Ehlers Danlos Syndrome, a rare genetic connective tissue disorder that affects every part of her body; joints, bones, soft tissues, blood vessels & internal organs. As a result she has developed abdominal vascular compression syndromes (AVCS).
She can't eat, drink or receive any nutrients through a feeding tube without suffering from excruciating pain, nausea & vomiting which is being caused from the AVCS. She has lost a significant amount of weight & has become very malnourished.
It's now critical that she travels to Germany for specialized life saving medical treatment & surgery that is not available in NZ. We leave on 9th June.
Jaimee bleeds internally & has been vomiting up blood for the past 5 years, unfortunately she has an abnormal gene that's associated with small vessel bleeds & factor X11 deficiency. Medical professionals have not been able to stop this bleeding in NZ so she'll undergo additional testing & possibly surgery with Prof of Gastroenterology while in Germany.
Jaimee was a talented Artistic Roller Skater & went to the NZ Nationals on 3 occasions. Talented in speech & drama, loved horse riding, singing, music & dance, did several pantomimes with the local theater & was cast as a lead in a short film.
All she wants is a chance to live & to be able to do the things she once loved.
Thank you for your prayers, kindness & generosity.
This page has been created as an alternative to the gofund.me
Funds donated will be used for flights, accommodation, scans, surgery, gastroscopy, and any other medical expense.
Any amount that's raised will go towards anything related to this medical journey even if we don't reach the goal.
Article in newspaper 23 September 2023
Jaimee and I had a follow-up interview with Hawke's Bay Today.
Below is the link to the article.
Arlene, thank you so very much for your very kind donation. It is so much appreciated...Please be sure to check in and follow Jaimees Facebook page for updates on her progress and help raise awareness for EDS and AVCs. https://www.facebook.com/profile.php?id=100092205140928&mibextid=ZbWKwL
It is a cruel disease. Thank you so very much Jenny for your very kind donation. It is so much appreciated...Please be sure to check in and follow Jaimees Facebook page for updates on her progress and help raise awareness for EDS and AVCs. https://www.facebook.com/profile.php?id=100092205140928&mibextid=ZbWKwL
Thank you so much for your generous donation
Thank you so much for your kindness and generosity. Your donation is so appreciated
Thank you for your kindness. Your donation is greatly appreciated
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