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A Family that needs a break!

  • Rileys journey in Kidz first hospital.

      27 October 2025
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    Truly humbled by the messages of love and positivity, the ward at kidz first have been hugely supportive.

    A Huge thankyou to Tania Thornton from Wings of Grace Foundation for coming to see us at hospital today helping us out with a much needed food parcel (Riley won't eat the hospital food) and some beautiful gifts for Riley that made her smile.

    On top of all that her and her husband also gifted our whole family with a piece of clothing from there new clothing brand, Total Awesomeness along side a donation and Riley and I are truly humbled by her kindness.

    Something like this is hard to accept, but Riley deserves the world and I am greatful for everyone who is helping make it that little bit easier on her to recover with a smile still on her face. 😊

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  • Rileys journey in Kidz first hospital.

      27 October 2025
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    This beautiful girl has had a topsy turvy kinda day where she was supposed to go on ward leave and head out for a couple hours but instead has had some heavier than normal breathing, had a 37.6 temperature and complaints of being hard to breathe or saying it's like breathing hot wind...

    Nurses have ran all the tests and everything is seeming reasonably normal but doctors and nurses still checking on her more regularly. She's still been pretty perky except she wasn't too happy that we couldn't go out today but she understands we need to make sure she's alright first.

    She's asleep now and hopefully she sleeps through, gets a good rest and feels tiptop again tomorrow.

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  • Rileys journey in Kidz first hospital.

      27 October 2025
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    Riley update!:

    Sheesh where to begin... had a trip to theater this morning for a dressings change and when Riley came back there was like this wind beneath her feet, she could fly again.

    They have reduced drastically the amount of dressings she has on so it was a first for both of us to see the skin grafts, I keep reminding myself and Riley of course that what we see now is not end result this is still fresh. They removed her catheter so can now go wees on the toilet again and that has given her a huge amount of freedom back.

    Today was her last dressing change in theater and they will begin doing them on the ward now and also alowing Riley some ward leave time, to be able to go home for a few hours here and there and get outside with her wheel chair more (Riley took this very literally).

    Next to go is her feeding tube hopefully over the weekend and honestly there has been some huge progression today and they were huge leaps but nothing my little warrior princess can't handle.

    We still have a journey ahead but I'm confident in Riley's ability's and determination that she is ready for whatever her next challenge may be.

    ❤️ I am proud of the girl you are and woman you will one day grow to be, you have shown me strength and resilience like no other Riley... I am proud to be called your Dad x❤️

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  • Riley's journey in kidz first hospital.

      27 October 2025

    speaking to the surgeon nice and early this morning before Riley's procedure and got to ask the question about a time frame for going home.. 🥺😩

    There was definitely no definitive answer from her but she started to talk about being able to go home for a night on the weekend... and borrowing the wheel chair to go get outside and being able to take Riley out during the day etc... She even said while Riley is still having dressing changes we would have a bed there...

    When I didn't know and wasn't trying to look too far forward it was like OK We get up and see what this day brings, yah never know what they'll say... and now from what the surgeon just said and coinciding with the previous statements "you'll get to know us very well" or "Riley will be involved with the burns team for probably the rest of her life" or "we will still be seeing Riley in 10 years time" really really actually just hit home.. well.. I mean.. hospital or I don't know anymore. I think Riley and I have just became tenants at kidz first hospital ward... this will take me a while to get my head around.

    Appreciate all the love from everyone already I'm blown away. Was approached by a journalist to do a news article on all this and I declined. My Mum, My Sister, MY DAUGHTER are all going through a hell of a time, I think life has hit me in the face so many times in a row now that I don't even flinch. Just keep walking...

    Hold Rileys hand... she'll guide me. 🥺😫😢

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  • Rileys journey in Kidz first hospital.

      27 October 2025
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    Riley update:

    Been a busy few days with young miss Riley, she's needed my attention more than ever at the beginning of the week and we are starting to bring the original confident Riley back.

    Medical wise everything is perfect, dressing change tomorrow and they'll be gradually reducing the amount of dressings she needs. We went on a bit of an emotional Rollercoaster to start the week but Riley and I have been having some fun with decorating the place and doing activities together ❤️

    Lots of physio in the future and hopefully we can get out of here in the next week or 2.

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  • Rileys progress.

      21 October 2025
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    Our littlest battler is really going through the motions right now, she is not in pain as such after her huge skin graft surgery but incredibly scared! She has had the bravest and strongest staunch face on through all her scrub downs and dressing changes, only managing to shed a tear when alone with daddy... putting her teddy's to sleep on the operating table each time before knowingly giving the gas mask to herself and going in to dream land, administering her own medication through her feeding tube and pick line like a professional nurse in the making but after Wednesday's big surgery being put to sleep for days on end with a breathing tube inserted and having her whole back and back left thigh grafted for donor skin to repair the damage to her chest, abdomen and groin she was woken up Friday afternoon doped out from morphine and I don't think this beautiful little girl will be the same mentally after this.. I watched an intelligent young child who could speak from the age of 1 cry like a new born baby. She explained to me nothing was sore, so what was the problem? She is so so traumatized by this and can't understand why this is happening she keeps crying for daddy and only saying she's scared... the young girl that was putting herself to sleep before theater just turned her head away from the Dr with the mask. She screamed at a nurse to be gentle with her or leave her alone.. Riley is going to never forget what was done to her... she is still trying to understand. Trauma.

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